News

EFCCA breaking news nr. 4/2011

Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step,...

EFCCA breaking news nr. 3/2011

EUROPEAN MEDICINE AGENCY NEW WEB SITE Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all. Patient and associated organisations together with other interested parties may like to be reminded that the...

EFCCA to co-chair Public Health Day on IBD at UEG Week

EFCCA is going to co-chair the Public Health Day on IBD to take place on 18 October 2014 in Austria on the occasion of UEG Week. United European Gastroenterology (UEG) is organising this Public Health Day at UEG Week 2014 in collaboration with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), Austrian Coeliac Society (OAZ), Association Of European Coeliac...

UEG Week Barcelona 2015

October 24-28, 2015, Barcelona, Spain UEG Week is the largest and most prestigious meeting of its kind in Europe, and many consider it to be the best digestive diseases meeting in the world. It has been running since 1992 and now attracts more than 14,000 people from across the world. It features the latest advances in clinical management, the best research in GI and liver...

EFCCA at European Commission workshop on Biosimilars

On 6 October 2015 the European Commission´s  Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products. The objective of the workshop were to gather all relevant interested parties in order to facilitate a multi-stakeholder exchange of information, experiences and reflection on the...

World IBD Day 2014

Running together to raise awareness on IBD On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million...

Pact for Patient Safety

New fraternity launched for safer healthcare everywhere  Brussels, October 15, 2014: The Irish Patients Association today launched the Pact for Patient Safety at the European Parliament with the participation of the European Commission, the European Centre for Disease Prevention and Control and the European Ombudsman.   Supported by more than 20 patient associations throughout Europe...

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.   In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the...

World IBD Day 2015

This year more than 40 countries across the globe  joined  together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of  World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of  “United We...

EFCCA article published in Journal of Crohn´s and Colitis

Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted.  The results of this survey can be used in defining strategic priorities and planning projects and awareness...