Archived Projects
World IBD Day 2023
IBD HAS NO AGE is an EFCCA campaign started in 2022 in order to raise awareness of how Inflammatory Bowel Disease (IBD) is impacting on the life of people aged 60 years and over. This year, for World IBD Day 2023 (19 May), we are launching a survey on people with IBD aged 60 years and over to investigate more on this topic with questions related to both quality of care and quality of...
HCP Training on Biosimilars
EFCCA has been collaborating with Medscape on a training session about biosimilars and the patients' perspective which is addressed to Healthcare providers. The training session includes a video simulation and a leaflet addressed to patients and to be distributed by physicians during their medical examination.
For more information about this project please contact...
World IBD Day 2015
As part of the World IBD Day celebrations EFCC organised participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon took place on 31 May at 10 am in Brussels, Belgium. Starting...
Patient representation in the Middle East
Joining forces to fight IBD in the Middle East
On 28-29 November a group of people living with IBD and IBD healthcare specialists from 6 countries in the Middle East including Oman, Saudi Arabia, Dubai, Qatar and Kuwait met for the first time in Dubai to exchange ideas and experiences on how to improve the quality of life of people with IBD in the Middle East.
The...
IMPACT survey
New IMPACT publication
On the occasion of World IBD Day, we are making available our latest publication of the IMPACT survey.
The survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011. IMPACT II is now on-going in several other countries in and outside Europe.
The main aim of the...
From EU citizenship to IBD-zenship 2013
Conference at the European Parliament, 17 October 2013
“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.
The conference saw a huge participation of over...
Join the Fight Against IBD 2013
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory...
ECCO EFCCA Patient Guidelines
In December 2014 the European Crohn’s and Colitis Organisation (ECCO) organised a meeting with IBD Patient Association Representatives and ECCO National Representatives (both nurses and physicians) with the aim to improve patient care and the quality of life for patients with inflammatory bowel disease (IBD). Patients, physicians and nurses were assembled in focus groups and reviewed topics which...
IMPACT
The IMPACT survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011.
The main aim of the survey was to obtain an international perspective of the impact of Inflammatory Bowel Disease (IBD) on patients’ lives. Individual member organisations of EFCCA in various European countries were responsible for the launch...
Indirect costs of IBD
Survey on the indirect costs of IBD
The aim of the study was to assess the influence of IBD on the patients productivity at work and relevant costs for society.
www.ibdcosts.eu
Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible ...
Break the Silence! World IBD Day 2021
This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag...
World IBD Day 2020
Make IBD work!
19 May World IBD Day – Awareness raising campaign
3.4 million people in Europe (10 million worldwide) live with Crohn's Disease or Ulcerative Colitis (also known as Inflammatory Bowel Disease - IBD). With IBD on the rise and mainly affecting young people of working age the European Federation of Crohn´s and Ulcerative Colitis Association (EFCCA) has...
Innovative medicines - Mapping project
Innovative medicines - EU mapping project
The objective of this project is to reduce health inequalities in Europe through an exhaustive mapping of all innovative treatments and devices available in member countries in Europe as concerns IBD care. The outcomes will support the exchange of knowledge and experience among EFCCA members, promote a better understanding of European healthcare...
Survey on couple with IBD and their offspring
IBD and parenthood - Survey on couples with IBD and their offspring
Although the cause of Inflammatory Bowel Disease (IBD) remains unknown, it is well recognized that a positive family history of disease remains the strongest risk factor for developing IBD. EFCCA believes that more studies into this matter are essential and we are therefore keen to support the survey on "The...
Patient Safety: Biologics and Biosimilars
Since about 2015 the issue on biologics and biosimilars has received a lot of attention from the medical, regulatory and patient community. Licensing rights of biological medicines used in the treatment not only of IBD but also other autoimmune modulated diseases are coming to an end and biosimilars medicines are being developed to compete with original biological treatment options....
World Symposium on IBD research funded by IBD patient associations
World Symposium on IBD Research funded by IBD patients associations
Global alliance against IBD
On 18 October 2012, the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.
The World Symposium aims to...
Join the Fight Against IBD Project 2012
Patient and Medical Associations Leaders from More than 30 Countries Gathered in Barcelona to launch the “Join the Fight Against IBD” Initiative
The initiative aimed to accelerate the disease burden recognition and to optimize standards of care for patients with IBD
PRESS RELEASE
Barcelona, 15 February 2012 – The European Federation of Crohn’s & Ulcerative Colitis...
Discover the true effect of anaemia in IBD
As many of us unfortunately know, fatigue is said to be one of the ‘big three’ symptoms of IBD (pain, fatigue, and urgently needing the toilet).
As several important articles note that anaemia may be especially significant in people with IBD, EFCCA, supported by Vifor Pharmaceuticals and A+A Research, carried out a survey to understand:
The effects of anaemia in IBD from the patient’s...
Catch your dream summer camp
The European Summer Camp, or “ESC”, project ran in 2010 and 2011. Two international summer camps with the motto “Catch Your Dream” were organized by EFCCA and the EFCCA Youth Group in the Netherlands, and they gathered together dozens of young people with Inflammatory Bowel Disease (IBD) from European countries. By providing such specifically tailored activities EFCCA offered young people...