In this section you will find a list of scientific publications relevant to the IBD community and in which EFCCA has been the co-author.
Publications
The Impact of Crohn’s Perianal Fistula on Quality of Life: Results of an International Patient Survey
The Impact of Crohn’s Perianal Fistula on Quality of Life: Results of an International Patient Survey
August 2023
An international patient survey examined the impact of Crohn’s perianal fistula on patients' quality of life. Patients with both Crohn’s disease and perianal fistulae reported significantly greater negative effects on overall quality of life, well-being, relationships, social...
A Narrative Systematic Review and Categorisation of Outcomes in Inflammatory Bowel Disease to Inform a Core Outcome Set for Real-world Evidence
A Narrative Systematic Review and Categorisation of Outcomes in Inflammatory Bowel Disease to Inform a Core Outcome Set for Real-world Evidence
November, 2022
The study developed a core outcome set for real-world studies in adult patients with inflammatory bowel disease (IBD). Other indicators include, for example, clinical, endoscopic, and biomarker remission, fatigue, and urgency to...
Out‐of‐pocket expenses of patients with inflammatory bowel disease
Out‐of‐pocket expenses of patients with inflammatory bowel disease: a comparison of patient‐reported outcomes across 12 European countries
October, 2022
There is a high variability of out-of-packet patient costs of inflammatory bowel diseases (IBDs), but the issue is not widely recognised. Therefore, the study compared patient costs of IBDs between 12 European countries.
Read Study...
Paediatric inflammatory bowel disease
Paediatric inflammatory bowel disease: a multi-stakeholder perspective to improve development of drugs for children and adolescents
September, 2022
The study aims to find potential advanced treatment options for children with inflammatory bowel disease. A 2-day virtual meeting was held on April 14–15, 2021, for multi-stakeholders (clinical academics, patient community, pharmaceutical...
What are the unmet needs and most relevant treatment outcomes according to patients with inflammatory bowel disease?
What are the unmet needs and most relevant treatment outcomes according to patients with inflammatory bowel disease? A qualitative patient preference study
September, 2022
As more therapeutic options with their own characteristics become available for inflammatory bowel disease (IBD), drug development and individual treatment decision-making needs to be tailored towards patients'...
Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
May, 2021
The pandemic of COVID-19 had posed challenges in every aspect of the people’s life. COVID-19 had affected all age groups in both previously healthy individuals and those with chronic disease including IBD. This study aimed to investigate the occurrence...
Indirect Costs of Inflammatory Bowel Diseases
Indirect Costs of Inflammatory Bowel Diseases
July, 2022
The study showed a high relevance of the indirect cost of IBD in the context of economic evaluation, as well as a between-country variability of work-related impairment or informal care.
Read Study
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
May, 2021
Heterogeneity exists in reported outcomes and outcome measurement instruments (OMI) from observational studies. A core outcome set (COS) for observational and real-world evidence (RWE) in inflammatory bowel disease (IBD) will facilitate...
Anti-SARS-CoV-2 vaccines in IBD
Implementation and short-term adverse events of anti-SARS-CoV-2 vaccines in Inflammatory Bowel Disease patients: an international web-based survey
May, 2022
Anti-SARS-CoV-2 vaccines clinical trials did not include patients with immune-mediated conditions such as inflammatory bowel disease (IBD). The study aimed to describe the implementation of anti-SARS-CoV-2 vaccination among IBD patients...
The Lucid Study
The LUCID study: living with ulcerative colitis; identifying the socioeconomic burden in Europe
December, 2021
Ulcerative colitis (UC) is an inflammatory bowel disease with increasing prevalence worldwide. Current treatment strategies place considerable economic and humanistic burdens on patients. The aim of this study was to determine the socioeconomic burden of UC in adult patients in...