Members
Europe
Austria
ÖMCCV - Österreichische Morbus Crohn / Colitis Ulcerosa Vereinigung
The ÖMCCV (Austrian Crohn’s Colitis Association) is a self-initiative for people affected with inflammatory bowel diseases (IBD). They are a non-profit association who aims to raise and advance public understanding of the problems faced by IBD sufferers.
+43 1 333 06 33
Belgium
Association Crohn-RCUH
The Crohn-RCUH non-profit association (A.S.B.L.) brings together patients suffering from Crohn's disease and ulcerative colitis (UCR). It is guided by a board of directors working in close collaboration with a medical and scientific committee. It aims to provide patients with general information via a quarterly journal and an annual meeting and to represent their interests to the state authorities.
+32 2 354 12 85
Crohn & Colitis ulcerosa Vereniging vzw
The Crohn- & Colitis Ulcerosa Association vzw is a patient association for individuals with chronic Inflammatory Bowel Disease (IBD). It aims to meet the social needs of people with IBD and their families, offering information through its quarterly magazine, website, and information sessions. The association works closely with its Medical Advisory Board, which includes experts from across Flanders, ensuring access to accurate and up-to-date medical information. It also advocates for government recognition of IBD and supports scientific research on the causes and treatments of the diseases. As a co-founder of EFCCA, it is involved in the latest developments in IBD research and treatment.
+32 468 27 70 52 / +32 468 29 61 12
Bulgaria
Българска асоциация болест на Крон и улцерозен колит
The Bulgarian Crohn's Disease and Ulcerative Colitis Association is managed by a Board of Directors (BoD) elected by its members. The Board oversees the association's activities, admits new members, and ensures the implementation of decisions made by the General Assembly. The Chairman of the Board handles the operational management, coordinates the Board's activities, and represents the association both domestically and internationally in dealings with government bodies, financial institutions, and other organisations.
+359 0887 868 778
Croatia
HUCUK - Hrvatsko udruženje za Crohnovu bolest i Ulcerozni Kolitis
The Croatian Association for Crohn's Disease and Ulcerative Colitis is a non-governmental, non-profit organisation founded in 2000 by a group of young people with IBD. It aims to raise public awareness about Crohn's disease and Ulcerative Colitis, and to address the challenges faced by those living with these conditions. The association strives to improve the quality of life for patients, promoting humanitarian, health, educational, cultural, social, informational, and recreational interests for people with IBD and those with disabilities caused by the disease.
All activities are based on volunteer work.
01/ 37-64-059 / 095/8165-447
Cyprus
ΠΑΣΥΕΚΚ - Παγκύπριος Σύνδεσμος για την Ελκώδη Κολίτιδα και τη Νόσο του Κρόουνς /
Cyprus Crohn's and Colitis Association
The association aims to support patients by providing assistance, care, and advocating for solutions to their challenges. It works towards establishing patient monitoring centres and raising public awareness about IBD. The association organises seminars, conferences, and discussions to promote research and improve patient care. Additionally, it collaborates with governmental, community, and international organisations to enhance support and treatment for those affected.
70008084
cycca.org@gmail.com
cycca.org/
Czech Republic
Pacienti IBD z.s.
Pacienti IBD z.s. supports, connects, and educates patients with Inflammatory Bowel Disease (IBD) in Czechia, Slovakia, and the diaspora. As professional patient advocates, the association collaborates internationally, consulting on patient involvement, clinical trials, and stakeholder communication. Founded in 2008 with support from the Czech Gastroenterological Society, Pacienti IBD z.s. has since expanded globally.
00420 773 209 320
Denmark
Colitis-Crohn Foreningen
The Colitis-Crohn Association was established on 15 March 1989 and currently has approximately 5,500 members. The primary bowel diseases it focuses on are Crohn's disease, Ulcerative Colitis, microscopic colitis, and irritable bowel syndrome. However, the association also works on a wide range of related bowel conditions. Today, over 70,000 Danes suffer from Crohn's disease, ulcerative colitis, and microscopic colitis, and when including irritable bowel syndrome (IBS), the total number exceeds 1 million Danes.
35 35 48 82
Estonia
EIBDA - Estonian Inflammatory Bowel Disease Association
The EIBDA is a voluntary, self-initiated charitable organisation acting in the public interest with the aim of helping patients tackle Ulcerative Colitis and Crohn’s disease as well as improve the patients’ quality of life and treatment conditions. The EIBDA unites, on a voluntary basis, physical and legal persons to protect the interests of both patients with Ulcerative Colitis and Crohn’s disease and their carers.
+372 5646 8816
Finland
IBD ja muut suolistosairaudet ry
The Crohn's and Colitis Association offers peer support to individuals with bowel disease and their loved ones to improve their well-being and quality of life. Peer support is available through meetings across Finland, Facebook groups, a discussion board on the association's website, and via e-mail or telephone with support staff. The aim is to facilitate interaction and provide emotional support from others who have experienced similar challenges. The association also offers adaptation coaching courses to help individuals cope with the daily realities of living with a long-term illness and provides the opportunity for members to apply for subsidised leave.
075 325 4400
France
Afa Crohn RCH France
Afa Crohn RCH France is the only French organisation, recognised as being of public utility, dedicated to chronic Inflammatory Bowel Diseases (IBD), including Crohn's disease and haemorrhagic rectocolitis. The association's missions include supporting research, improving care pathways, and producing knowledge about living with these diseases. It provides information and support to patients and their families through a network of trained professionals and volunteers across 22 regions. The association also advocates for patients' voices, trains health professionals, raises awareness about these conditions, and acts as a public health advocate in health democracy.
0 811 091 623
Germany
DCCV e.V. - Deutsche Morbus Crohn / Colitis Ulcerosa Vereinigung
The German Crohn's Disease / Ulcerative Colitis Association (DCCV) e.V. supports over 400,000 people with chronic inflammatory bowel disease (IBD) in Germany. Its primary goal is to help individuals manage their challenging life situations. The DCCV offers personal counselling, connects members to self-help groups, healthcare professionals, and hospitals, and provides support with issues related to health insurance, social security, and employment. It also addresses specific needs for children through its child/parent initiative, and supports various working groups, including those focused on nutrition therapy. The association promotes awareness, funds research, and collaborates with scientists to advance IBD research.
+030 2000 392 11
dccv.de
info@dccv.de
Greece
HELLESCC - Hellenic Society of Crohn's Disease's and Ulcerative Colitis' Patients
The Association of People with Crohn's Disease and Ulcerative Colitis in Attica, Greece, was founded in 2006 by a group of patients to address the isolation of those affected by these conditions. The association aims to provide support, raise awareness about the impact of these diseases on daily life, and represent patients' rights. It works to offer information in accessible language and advocate for the recognition of patients' rights, which have been granted to those with other chronic diseases. Although there is no comprehensive census of IBD sufferers in Greece, studies suggest that around 10,000 people may be affected. The association amended its statutes in 2014, expanding its reach to support all sufferers across Greece.
+30 6944025788 / +30 6907605369
Hungary
MCCBE - Magyarországi Crohn-Colitises Betegek Egyesülete
The Magyarországi Crohn-Colitises Betegek Egyesülete (MCCBE) was founded in 1994 by a group of patients and a doctor, initially meeting for medical lectures. It became an official association in 1997 and gained public benefit status in 2003. The association's main objectives are to help patients manage their condition and improve their quality of life, represent their interests in legislative matters, support medical research, and participate in international IBD patient organisations. Their activities and programmes aim to achieve these goals.
+36 20 5613704
Iceland
Crohn's og Colitis Ulcerosa samtökin
The CCU organisation was founded in October 1995 to support individuals with Crohn’s disease and Ulcerative Colitis. Its goals include providing support to newly diagnosed patients, raising awareness, and publishing educational materials. The idea was initiated by digestive specialist Ásgeir Theódorsson, who recognised the need for such a group. After several years of preparation, the organisation was officially established in 1995, with around 60 attendees at the founding meeting.
+354 871 3288
Ireland
Crohn’s & Colitis Ireland
Crohn's & Colitis Ireland aims to support individuals and families affected by Inflammatory Bowel Disease (IBD), providing guidance, resources, and a compassionate community. Their mission is to improve the quality of life for those living with Crohn’s disease and Ulcerative Colitis through advocacy, peer support, and educational resources. They offer services such as a dedicated support line, membership benefits, events, peer networks, and research support. While they cannot provide medical advice, they focus on addressing the emotional, social, and practical challenges of living with IBD.
+353 (01) 872 1416
Italy
AMICI ETS - Associazione Nazionale per le Malattie Infiammatorie Croniche dell’Intestino
The Amici Association is a non-profit organisation formed by individuals with Ulcerative Colitis or Crohn's Disease and their families. Established as a national association in 2010, it has branches in 15 regions of Italy. The association works to improve the social inclusion of people with chronic conditions, advocating for better public awareness and legislation. It is supported by committees of medical specialists and focuses on addressing the challenges faced by patients, including social and legal obstacles.
+39 (02) 83413346
Latvia
LKKSB - Latvijas Krona un kolīta slimnieku biedrība
The Latvian Crohn's and Colitis Society, founded on October 19, 2011, aims to unite patients with Crohn's and ulcerative colitis, their families, medical professionals, and others. The association focuses on addressing issues related to these conditions across medical, social, economic, and educational sectors. It is a voluntary, non-profit organisation dedicated to achieving its statutory goals.
Lithuania
LR Krono ir opinio kolito ligų draugija
The Crohn's and Ulcerative Colitis Society aims to unite individuals with Crohn's disease and Ulcerative Colitis, working to improve their quality of life and social integration. It provides advice and assistance, fosters collaboration between patients and medical professionals, and promotes a healthy lifestyle. The society encourages self-confidence, independence, and responsibility for one's health. Established on 26 November 2002, the society operates independently, collaborating with medical experts, local and international organisations, and state institutions while defending patients' rights. It does not have branches or representative offices.
+ 370 657 70734
Luxembourg
AFA Luxembourg
The AFA is powered by 280 dedicated volunteers, 8 permanent staff members at its headquarters, and specialised temporary staff. Together, they work tirelessly to raise awareness of IBD and provide support to patients and their families. Their efforts focus on addressing patients' needs while also funding research to foster hope for a cure.
01 42 00 00 40
Malta
MACC - Malta Association of Crohn's and Colitis
The Malta Association of Crohn's and Colitis (MACC) is a registered non-profit organisation that supports individuals affected by Crohn's disease and Ulcerative Colitis. MACC provides support and information to patients and their families, raises public awareness about these chronic conditions, and strives to improve patients' self-confidence, quality of life, and overall well-being. The organisation also advocates for patients' rights and promotes research on these conditions.
99303964
macc.org.mt
info@macc.org.mt
Montenegro
CUKUK - Crnogorsko Udruženje za Kronovu Bolest i Ulcerozni Kolitis
CUKUK is the patient association for Crohn´s disease and Ulcerative Colitis in Montenegro.
+382 69 183 623
cukuk.montenegro@gmail.com
Netherlands
Crohn's & Colitis NL
Crohn & Colitis NL is the leading patient organisation in the Netherlands for individuals with chronic digestive diseases, such as Crohn's disease and ulcerative colitis, collectively known as Inflammatory Bowel Disease (IBD). Since 1979, the organisation has been advocating for the rights and interests of people with IBD, as well as those with short bowel syndrome or intestinal failure. It serves as a platform where individuals affected by IBD can connect, share experiences, and learn from each other, while providing reliable medical information and testing resources from the perspective of those living with IBD.
+31 348 432920
crohn-colitis.nl
infor@crohn-colitis.nl
Norway
Mage-tarmforbundet
The Norwegian Gastrointestinal Association (Mage-tarmforbundet) is a nationwide patient organisation supporting individuals with digestive disorders and their families. It advocates for their interests through political engagement, peer support, counselling, information campaigns, research funding, and national and international collaboration. As a patient-driven organisation, it offers various activities, including local meetups, evening talks, a quarterly member magazine, social media engagement, films, and forums. It also organises annual youth and family gatherings, webinars, and IBD Day events.
(+47) 976 864 271
Poland
J-elita - Polskie Towarzystwo Wspierania Osób z NZJ
The Polish Society for Supporting People with Inflammatory Bowel Disease, J-elita, was founded in 2005 by parents and patients to support those living with IBD. With over 2,600 members across Poland, it advocates for better treatments, medication access, and specialist care. Beyond advocacy, J-elita builds a strong community through World IBD Day events, social gatherings, and outdoor activities. It provides vital support with hospital visits, rehabilitation camps, and financial aid, ensuring patients have access to care and a better quality of life.
+48 695 197 144
j-elita.org.pl
biuro@j-elita.org.pl
Portugal
APDI - Associaçao Portuguesa da Doença Inflamatòria do Intestino
The Portuguese Association for Inflammatory Bowel Disease (APDI) is a non-profit patient organisation dedicated to supporting individuals with IBD, their families, and friends while raising public awareness. Founded in 1994 and recognised as a Private Institution of Social Solidarity since 2001, APDI provides information, psychological support, and practical guidance to help patients manage their condition with a positive outlook. It offers assistance via phone, email, and in-person meetings, as well as organising awareness events and an annual forum with medical experts.
22 208 6350 / 93 208 6350
apdi.org.pt
geral@apdi.org.pt
Romania
ASPIIR - Association of People with Inflammatory Bowel Diseases in Romania
The Association of People with Inflammatory Bowel Diseases in Romania (ASPIIR) was founded in 2009 and officially established in 2010 to support individuals with IBD, offering information, shared experiences, and answers to their concerns. Initially formed through meetings at the Fundeni Clinical Institute in Bucharest, ASPIIR has since expanded to include patients from across Romania, along with ostomates, their families, and volunteers. Affiliated with EFCCA, it collaborates with European patient associations and partners with medical teams and the biopharmaceutical industry to advocate for better care. ASPIIR welcomes new members to share their experiences and contribute to improving its activities and support initiatives.
Russia
МОО "Доверие" (НЯК, БК)
The Trust public organisation was founded in St. Petersburg in 2011 to support patients with Inflammatory Bowel Diseases (IBD) and expanded in 2016 to include those with short bowel syndrome (SBS). Now operating across 47 branches in Russia, it is a member of national and international patient alliances, including EFCCA. Trust focuses on providing social and psychological support, improving patient adaptation, advocating for better treatment and medication access, and fostering connections among members. It works closely with healthcare bodies, charities, and the media to raise awareness, expand its reach, and enhance the quality of care for people living with IBD and SBS.
+7 913 903 6814
Serbia
UKUKS - Udruženje za Kronovu bolest i ulcerozni kolitis Srbije
UKUKS is a non-governmental, non-profit organisation founded in 2010 to raise awareness of inflammatory bowel diseases (IBD), which are increasingly affecting younger people. As chronic and incurable conditions, IBD significantly impacts patients' quality of life, often leading to social isolation. UKUKS aims to support those affected through shared experiences, social engagement, and advocacy for better healthcare. Run entirely by volunteers, the organisation works to improve treatment options and provide a sense of community for those living with IBD.
+381 69 61 44 21
ukuks.org
ibd.srbija@gmail.com
Slovakia
Slovak Crohn Club
The Slovak Crohn's Club is a patient association supporting individuals with Crohn’s disease and Ulcerative Colitis. It provides a platform for patients to connect, share experiences, and access valuable information, especially for those newly diagnosed. The club organises regular meetings, publishes a bulletin with updates on treatments and disease management, and offers an annual rehabilitation stay focused on physical and mental well-being. As a member of EFCCA, it collaborates with European patient organisations and works closely with medical professionals and pharmaceutical companies to advocate for better care and support for those living with IBD.
+421 918 216 184
crohnclub.sk
predsednictvo@crohnclub.sk
Slovenia
KVČB - Društvo za Kronično Vnetno Črevesno Bolezen
The Society for Chronic Inflammatory Bowel Disease is a voluntary, independent, non-profit organisation dedicated to supporting children, adolescents, and adults with IBD in Slovenia. Established in 2004, it now has over 1,200 members across 11 sections, working to improve the quality of life for those affected. Recognised as a disability organisation and a public-interest association, it collaborates with national authorities and is a member of EFCCA, advocating for better care, awareness, and support for people living with IBD.
041 665 000
Spain
Confederación ACCU Crohn y Colitis Ulcerosa
ACCU Spain, established in 1987, is a non-profit confederation dedicated to supporting people with Crohn’s disease and Ulcerative Colitis. With over 8,000 members across 34 regional groups, the organisation aims to improve patients' quality of life by offering support, promoting research, and advocating for better treatment and welfare. Its activities focus on representation, research, training, dissemination, and social action. ACCU Spain also organises the National Assembly, which features medical talks and cultural activities, with the honorary presidency of H.R.H. Felipe VI. It is a founding member of EFCCA and collaborates with various Spanish patient and medical organisations.
915 426 326
Sweden
Magtarm Förbundet
The Swedish Gastrointestinal Association is a non-profit organisation dedicated to supporting individuals with permanent disabilities caused by diseases or disorders of the digestive tract and pelvic floor. With around 1.5 million people in Sweden experiencing stomach issues, including 65,000 with inflammatory bowel disease (IBD), the association aims to help these individuals live as unrestricted a life as possible. It covers a wide range of gastrointestinal conditions, not limited to specific diagnoses, and focuses on providing community, sharing knowledge, and advocating for patients’ rights. Founded in 1979 in response to the lack of awareness about gastrointestinal diseases, the association is driven by the collective efforts and experiences of its members.
08-642 42 00
Switzerland
Crohn Colitis Schweiz / Crohn Colite Suisse
Crohn's Colitis Switzerland (CCS) is a non-profit patient association dedicated to individuals with chronic inflammatory Bowel Disease (IBD) in Switzerland. The association aims to raise public awareness and improve understanding of the challenges faced by those with IBD, while also providing practical and moral support to help patients enhance their quality of life. CCS offers a network for individuals affected by Crohn's disease or ulcerative colitis, encouraging social connections and supporting emotional well-being. By fostering a sense of community, CCS helps members accept their illness and cope with the related family and social challenges, addressing fears and taboos to prevent isolation. Members share experiences and support each other, creating a family-like environment where no one feels alone.
0800 79 00 79
crohn-colitis.ch (German) / crohn-colite.ch (French)
Ukraine
Асоціація хворих із запальними захворюваннями кишечника «Повноцінне життя»
The Association of Patients with Inflammatory Bowel Disease "Fulfilling Life," founded in 2018 by IBD patients, aims to improve the quality of life for those affected by IBD in Ukraine. Its vision is affordable treatment and a full life for patients. The association works to implement state programs for accessible IBD treatment, improve medical care, protect patients' rights, and provide psychological and informational support. It also focuses on social rehabilitation, advocacy, and promoting state and international programs for IBD prevention and treatment. The association engages in public control of healthcare and social protection institutions and participates in the development of relevant national and international policies.
+380 95 417 7045
United Kingdom
Crohn's & Colitis UK
Crohn's & Colitis UK, founded in 1979, is the UK's leading charity supporting those with Crohn's disease, ulcerative colitis, and other forms of inflammatory bowel disease (IBD). The charity has 28,000 members, including patients, their families, friends, and healthcare professionals, who help organise 50 Local Groups across the UK. These groups arrange educational events, raise awareness, and fundraise. The charity's mission is to improve the lives of the 300,000 people in the UK affected by IBD. They focus on breaking taboos, driving research, and providing support through collaboration, empathy, and advocacy.
0300 222 5700
South America
Argentina
Fundación Más Vida
Más Vida's mission is to promote and conduct studies and actions that raise awareness of Inflammatory Bowel Disease (IBD) among children, adults, families, and the broader community. The organisation focuses on improving the diagnosis, treatment, and quality of life for those affected by IBD. Its objectives include promoting IBD awareness, encouraging collaboration between patients and healthcare professionals, unifying clinical and therapeutic criteria for diagnosis and treatment, supporting the social inclusion and education of those with IBD, advancing research, and promoting prevention and health education.
0800 222 0614 / +54 11 4431-6842
Mexico
Vivir con Crohn y CUCI A.C.
Vivir con Crohn y CUCI A.C. is the national IBD association of Mexico, dedicated to supporting people living with Crohn’s disease and Ulcerative Colitis. The organisation provides education, advocacy, and resources to improve patients' quality of life while raising awareness about inflammatory bowel disease (IBD) across the country. Through community engagement, patient support initiatives, and collaboration with healthcare professionals, Vivir con Crohn y CUCI works to ensure better care and understanding of IBD in Mexico.
+52 55 5069 1700
Brazil
DII Brasil
DII Brasil, the National Association of Patients with Inflammatory Bowel Disease, was established to support the creation and development of patient associations across all states and federal districts of Brazil. As a non-profit NGO, it aims to strengthen regional organisations by providing the necessary resources and guidance to enhance their impact. Committed to raising awareness of Crohn’s disease and Ulcerative Colitis, DII Brasil advocates for faster diagnoses, improved treatment access, and public policies that protect patient rights. Guided by values of empathy, communication, resilience, and innovation, it works to foster a strong, united IBD community while promoting education and social inclusion.
+55 31 97102 5465
Trinidad &
Tobago
National Association of Crohn’s and Colitis Trinidad and Tobago
The National Association of Crohn’s and Colitis of Trinidad and Tobago (NACCTT) raises awareness and advocates for better treatment for IBD patients. As the country’s only IBD support organisation, it provides education, a safe space for patients, and a community for shared experiences. Its motto: Hope, Help, Heal.
(868)482-0736
Africa / Middle East
Israel
בישראל העמותה לתמיכה בחולי קרוהן וקוליטיס כיבית
The Israel Fund for Ulcerative Colitis and Crohn's Disease (CCFI), founded in 1994, is the only organisation in Israel providing continuous support for IBD patients and their families. A member of EFCCA, CCFI advocates for patients' rights, raises public awareness, and works to improve quality of life through education, personal assistance, and policy engagement.
+972 36421999 / +972 37441391
Lebanon
I Battle Disease
I Battle Disease is a patient association from Lebanon, formed by individuals affected by Crohn’s disease and Ulcerative Colitis. Bringing together patients, family members, and healthcare professionals, the organisation works to raise awareness about IBD and support those living with the condition.
Asia / Oceania
Kazakhstan
Фонд Помощи и Поддержки Лиц с Воспалительными Заболеваниями Кишечника
The IBD Foundation, established in 2017, supports individuals with IBD in Kazakhstan. Though still a relatively young organisation, it is committed to improving the lives of IBD patients and helping them better understand the disease.
+7 701 718 4565
vzk.kaz@gmail.com
Instagram
Singapore
Crohn's & Colitis Society of Singapore
The Crohn’s and Colitis Society of Singapore, established in 2012 and operating under the Ministry of Health since 2014, aims to improve the quality of life for patients with Crohn’s Disease, Ulcerative Colitis, and related conditions. Its mission focuses on four key areas: patient support groups, public education and awareness, advocacy, and promoting research.
+65 9756 4066
ibd.org.sg/english/
info@ibd.org.sg
Turkey
IBHDYD - İnflamatuvar Bağırsak Hastaları Dayanışma Yardımlaşma Derneği
The IBHDYD Association, founded in Istanbul, aims to promote cooperation and solidarity among IBD patients, protect patient rights, share advancements in treatment methods, and address their concerns. Its objectives include disseminating accurate information on IBD diagnosis and treatment, providing contemporary medical care, identifying and solving patient problems, conducting educational programs, supporting scientific research, and collaborating with local and international IBD organisations. The association also organises scientific events, publishes materials, and offers financial and moral support for IBD-related education and research.
+90 312 284 15 11 / 12
www.ibhd.org.tr
dernek@ibhd.org.tr
New Zealand
CCNZ - The Crohn’s and Colitis New Zealand Charitable Trust
Crohn's and Colitis New Zealand is a charitable trust established to provide support, advice, resources, and information for those affected by Crohn's disease and Ulcerative Colitis. Founded by individuals with these conditions and medical specialists, the organisation is led by Dr. Richard Stein, chairman, along with seven trustees and four medical advisors. Since its formation in 2010, the trust has grown to include support groups in 13 regions across New Zealand, working together to offer fellowship, education, and participate in fundraising efforts.
0800 ASK IBD