News

1st GlycanTrigger Patients Symposium

We are excited to invite you to the 1st GlycanTrigger Patients Symposium, an important event we are co-organising together with the Portuguese Society for Innovation (SPI), focused on collaborative discussions around strategies for predicting and preventing IBD. This virtual symposium will take place on 19 November 2024, from 5:30 PM to 7:00 PM CET via Zoom. This annual event will provide a...

Empowering Patient Voices in Health Technology Assessment: EFCCA's Conference at UEG Week 2024

On 12 October 2024, EFCCA organised a conference during UEG Week in Vienna titled: "How can patients play a crucial role in medicines-related decision-making? An open dialogue with stakeholders and the presentation of the EFCCA HTA Guidebook." EFCCA presented its latest initiative to empower patients in healthcare decision-making: the Guidebook on Health Technology Assessments (HTA). Presented...

EFCCA Magazine 3/2024

New look and new issue of the EFCCA Magazine!  We’re excited to present the latest issue of the EFCCA Magazine, now with a refreshed design! Inside, you’ll find an exclusive interview with Professor James Lee, who shares insights on his groundbreaking research into the causes of Inflammatory Bowel Disease (IBD). In this issue, we also introduce the newly launched EFCCA Youth Group...

Join Our Training Initiatives!

EFCCA is excited to introduce a series of webinars, workshops and initiatives to be launched after the summer break. These sessions are designed to share insights and knowledge from the five Horizon Europe and two H2020 projects in which EFCCA is actively involved and ensure the patient perspective is reflected in the final results.  As a service to our members, these...

Revolutionising IBD Research: James Lee Discusses Landmark Findings

Revolutionising IBD Research: James Lee Discusses Landmark Findings Interviewed by Isabella Haaf  (EFCCA's Head of Communications) In a groundbreaking discovery, UK researchers have identified a new biological pathway that drives Inflammatory Bowel Disease (IBD) and could potentially be targeted with existing drugs. This significant finding  - published in the nature journal - was...

WORLD IBD DAY 2024: Reports on Global Advocacy and IBD Awareness

WORLD IBD DAY 2024: Reports on Global Advocacy and IBD Awareness We are pleased to announce the release of two significant reports that highlight our continuous efforts and achievements in advocating for improved IBD care and quality of life worldwide. World IBD Day 2024 Report This comprehensive document details the inspiring activities and collective efforts from our...

GA 2024 - Brussels

EFCCA General Assembly 2024: A Commitment to Advocacy and Progress   From 7 to 9 June 2024, Brussels hosted the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) General Assembly, representing a significant event for our organisation.                      ...

EFCCA Magazine 2/2024

We’re excited to share our latest edition of the EFCCA Magazine!   Discover how EFCCA and its members are making a difference locally and globally, from raising IBD awareness through impactful campaigns advocating for improved healthcare policies. Learn more about our partnerships involving the European Association of Hospital Pharmacists (EAHP), founding members and sister patient...

"IBD Dialogues: Building Generations" EFCCA Conference at ECCO'24 Congress

           Watch the full video recording: EFCCA organised the conference "IBD Dialogues: Building Generations" held on 22 February at the ECCO'24 Congress in Stockholm presenting the preliminary results of our study on people with IBD aged +60, which EFCCA carried out together with Leiden University Medical Center....

EFCCA Magazine 1/2024

We’re excited to share this year's first edition of the EFCCA magazine!  - Read our interview with R. Campanella, as he shares his patient perspective from the 3rd ECCO Council Meeting which gathered national representatives from the patient and ECCO community - Discover the news from our members, sharing their stories and experiences.  - Take a look at a study shared with...