News
Symptom Tracker
MyUC.eu
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
http://myuc.eu/
Any feedback please send to Isabella Haaf...
Symptom Tracker
YourUC.com
This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:
username: guest@youruc.com
password: guest
Please check out the tool at:
http://youruc.sytes.net/my-uc-log/
Any feedback please...
IBD11
IBD11 - unleash your knowledge
EFCCA has been invited to speak at the IBD 11 meeting that took place in Prague (14-16 November). The meeting was organised by the pharmaceutical company Ferring and was attended by over 850 physicians from over 50 countries. Marco Greco, EFCCA chairman, presented during the opening session the work of EFCCA and the patient perspective. He put forward strong...
EFCCA and World IBD Day 2013: the video
Videoclip from our World IBD Day event at the European Parliament (16 May 2013)
Date of issue: 2013-05-16
World IBD Day 2013
This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org...
Short summary of the Join the Fight Press conference
Watch the video
Date of issue: 2013-03-11
Executive Summary - Patient Advocacy Workshop
This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of immune modulate disease groups.A full report will be made available shortly.
Date of issue: 2016-02-06
IPODD ... EU research project on IBD
The EU project IPODD takes a pragmatic approach to IBDs by focusing on the final stages of gut damage.
Sergio Pistoi, IPODD Public Information Officer*
If criminals were behind inflammatory bowel diseases (IBDs), it would be a band of terrorists, not lonely felons. Dozens of predisposing genes, the immune system and maybe tens of other unknown factors conspire to determine IBDs. There is no...
Join the fight against IBD Presentation Video
Watch the Join the fight against IBD Presentation Video
Date of issue: 2012-03-02
EFCCA AGM 2016
The 26th Annual General Meeting of EFCCA took place in Brussels from 27-28 May 2016. It gathered over 40 delegates for one and a half days of busy work and exchange of information. In addition to the dealing with the institutional work and activities, delegates of the GA also listened to a presentation made by Marek Lichota from Apetitie for Life about artificial nutrition, a subject of...