Empowerment

COVID-19 Vaccine IBD - Perceptions and Safety of COVID-19 Vaccine in patients with Inflammatory Bowel Disease

IBD in the workplace

In line with EFCCA´s priority theme for 2020 on Work and IBD  this video animation in the series of "My IBD journey" looks at the issue of IBD in the workplace. It provides support and advice about looking for a new job, how best to talk about your condition with your colleagues, and practical advice about managing IBD at work.

ImmUniverse in a nutshell - watch and share our brand-new animated clip! Together, we @ImmUniverse_EU will improve diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. See more on www.immuniverse.eu 

Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/

We are happy to share a series of IBD podcast that have been prepared by our colleagues from the Serbian IBD patient association UKUKS together with Stetoskop info. They are subittled in English and deal with a  wide range of relevant and interesting topics related to IBD. 

You can view them here: https://www.youtube.com/playlist?list=PLqc3GWypjDT4gwBq3tEz9mctZWBi2pZQM

EFCCA Patient Talk: Seasonal vaccines and IBD

Watch the event on Youtube:  https://www.youtube.com/watch?v=0bE5C3mvmQY

Friday 27 November 2020, 3-4 pm

We are sharing information about a study to evaluate patient preferences for treatment goals in inflammatory bowel disease (IBD). The primary objective of this study is to evaluate and quantify patient preferences for IBD treatments, trading-off between different attributes of efficacy, complications/risks of treatment and health-related quality of life (HRQOL) in IBD. This will be a multi-country, cross-sectional, non-interventional online survey in adult patients with IBD.  The study is available in English, French,  German, Dutch, Italian, Portuguese and Spanish. 

EFCCA is partner in an exciting #Horizon2020 project called ImmUniverse aimed at improving diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. Go and check out the freshly launched @IMI_JU #ImmUniverse website! You can now keep yourself up-to-date on all major project developments by visiting www.immuniverse.eu #ulcerativecolitis #atopicdermatitis #IMI_JU #H2020

EFCCA Academy 2020 - Training Certified Patient Experts

We are pleased to announce that our new edition of the EFCCA Academy offering specialized training for IBD patients  started on  November 18^th 2020 via the EFCCA online learning platform. This training  will focus on Clinical Trials and is composed of 3 modules:

COVID-19 psycho-social impact of lockdown in patients with IBD

“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?