Empowerment

Pouch surgery

"Considering whether to have ileal pouch surgery" is a booklet for ulcerative colitis patients which was recently made in a joint effort between Dr Andrew McCombie, Crohn ́s and Colitis New Zealand (patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer these questions on surgically removing their colon (called a “colectomy”).

Read time: 1 min

Pouch surgery

"Considering whether to have ileal pouch surgery" is the title of a booklet for ulcerative colitis patients that was recently made in a joint effort between Andrew MacCombie from Crohn´s and Colitis New Zealand (and patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer questions concerning surgically removing their colon (called a “colectomy”).

Read time: 1 min

Report from Nutrition Conference

The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a conference for EU patients’ groups to discuss the topic of nutrition. 

Read time: 1 min

BAB Survey

BAB survey

In late 2014 we launched a survey entitled BAB – Biologics and Biosimilars to assess patients knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The scientific coordinator of the BAB survey is Professor Laurent Peyrin- Biroulet -  from the Department of Hepato-Gastroenterology CHU in Nancy, France.

Read time: 3 mins

The IBD Journey

The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.

Read time: 1 min

EFCCA YOUTH Academy

We launched our Youth Academy addressed to young IBD patients (aged between 18 and 30) with the aim to increase the representativeness of the youth group, create a cohesive group of leaders of tomorrow and to empower young representatives.

The training programme was launched in November 2021 via the EFCCA's online learning platform and was attended by 14 students.

Read time: 3 mins

The impact of perianal fistula in Crohn’s disease on quality of life

The impact of perianal fistula in Crohn’s disease on quality of life: results of a patient survey conducted in Europe

May, 2021

Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL. 

Read time: 1 min

Conjugal inflammatory bowel disease

Conjugal inflammatory bowel disease: a systematic review and European survey

February, 2021

The frequency of inflammatory bowel disease (IBD) is increased after marriage to an individual with the disease. Importantly, the offspring of these couples have a significant risk for developing the disease. Herein, the study  aimed to better characterise conjugal IBD.

Read Study 

Read time: 1 min