Empowerment
Final results of perianal fistula survey available
We are excited to share our findings of the survey “The impact of perianal fistula in Crohn’s disease on quality of life” which is being presented virtually at the 16th ECCO Congress (2nd – 3rd and 8th – 10th July, 2021.) Check out the e-poster with the full results! #ECCOcongress #ECCO2021 #perianalfistula #Crohn #survey
Go to poster presentation
Results of the survey on couples with IBD and their offspring
New publication!
COVID-19 Vaccine IBD
COVID-19 Vaccine IBD - Perceptions and Safety of COVID-19 Vaccine in patients with Inflammatory Bowel Disease
My IBD Journey: IBD in the workplace
IBD in the workplace
In line with EFCCA´s priority theme for 2020 on Work and IBD this video animation in the series of "My IBD journey" looks at the issue of IBD in the workplace. It provides support and advice about looking for a new job, how best to talk about your condition with your colleagues, and practical advice about managing IBD at work.
ImmUniverse
ImmUniverse in a nutshell - watch and share our brand-new animated clip! Together, we @ImmUniverse_EU will improve diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. See more on www.immuniverse.eu
Expressive Writing Intervention
Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/
IBD podcasts
We are happy to share a series of IBD podcast that have been prepared by our colleagues from the Serbian IBD patient association UKUKS together with Stetoskop info. They are subittled in English and deal with a wide range of relevant and interesting topics related to IBD.
You can view them here: https://www.youtube.com/playlist?list=PLqc3GWypjDT4gwBq3tEz9mctZWBi2pZQM
EFCCA Patient Talk: Seasonal vaccines and IBD
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
Study on Patient Preference
We are sharing information about a study to evaluate patient preferences for treatment goals in inflammatory bowel disease (IBD). The primary objective of this study is to evaluate and quantify patient preferences for IBD treatments, trading-off between different attributes of efficacy, complications/risks of treatment and health-related quality of life (HRQOL) in IBD. This will be a multi-country, cross-sectional, non-interventional online survey in adult patients with IBD. The study is available in English, French, German, Dutch, Italian, Portuguese and Spanish.