COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
COVID-19 and medicines supply: “Are we running out of medicines?”
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”
The highly anticipated ECCO-EFCCA Patient Guidelines have been presented at a Press conference on March 16, 2016 at the RAI Amsterdam Congress Center, preceeding the 11th ECCO Congress.
Watch an INTERVIEW (click here) with one of the Chair of the Patient Working Group, Martin Kojinkov, EFCCA chairperson.
On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community
as well as representatives from the pharmaceutical industries and other stakeholders in order to discuss the issue of biological medicines and biosimilars.
International conference on Patient Safety, European Parliament, Brussels
No decision about us without us!
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers patients and physicians a common background of knowledge that may facilitate dialogue, understanding and common involvement in decision making.
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
EFCCA CEO, Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care.
The press conference was organised following the publication of the UEG´s report on Paediatric Digestive Health Across Europe.
For more information please contact our offices.