Our latest EFCCA Patient Talk "(IBD) Families First" took place on 30 June 2021 from 5 - 6 PM.
NEW: Link to register to the focus group of this project: https://redcap.link/IBD_families
Families First is a global survey aimed at 1st degree relatives of IBD patients on preferences and fears for prediction & prevention interventions.
Friday 5 February 2021, 4:30 PM – 5:30 PM CET
As part of the EFCCA Patient Talks series, we organised our latest EFCCA Patient Talk which took place on Friday 5 February 2021 from 4.30 to 5.30 pm (CET) at our EFCCA Facebook
Live event. https://fb.me/e/3ztVNJwUG
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
COVID-19 and medicines supply: “Are we running out of medicines?”
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”
The highly anticipated ECCO-EFCCA Patient Guidelines have been presented at a Press conference on March 16, 2016 at the RAI Amsterdam Congress Center, preceeding the 11th ECCO Congress.
Watch an INTERVIEW (click here) with one of the Chair of the Patient Working Group, Martin Kojinkov, EFCCA chairperson.
On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community
as well as representatives from the pharmaceutical industries and other stakeholders in order to discuss the issue of biological medicines and biosimilars.
International conference on Patient Safety, European Parliament, Brussels
No decision about us without us!
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers patients and physicians a common background of knowledge that may facilitate dialogue, understanding and common involvement in decision making.