Empowerment

The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life

Final Results available!

 

We are excited to share our findings of the survey “The impact of perianal fistula in Crohn’s disease on quality of life” which is being presented virtually at the 16th ECCO Congress (2nd – 3rd and 8th – 10th July, 2021.)  Check out the e-poster with the full results! 

Go to Patient_Survey Poster_ECCO2020_0.pdf

Go to poster presentation ECCO 2021

Read time: 2 mins

EFCCA Patient Talks

The global impact of COVID-19 has been overwhelming and without pause, accelerating at lightning speed, changing our lives and our way of seeing the world. In recent months, unfortunately, the philosophy of our organization, which is to create spaces for meeting, for dialogue between the various associations and all the interlocutors. has also had to change.

Read time: 1 min

HCP Training on Biosimilars

EFCCA has been collaborating with Medscape on a training session about  biosimilars and the patients' perspective which is addressed to Healthcare providers. The training session includes a video simulation and a leaflet addressed to patients and to be distributed by physicians during their medical examination. 

For more information about this project please contact the EFCCA office.

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EFCCA Academy

One of our flagship activities in terms of patient empowerment is the EFCCA Academy. The Academy was launched in 2018 to provide specialized training for people with IBD enabling them to raise awareness on specific topics and to become advocates for their IBD patient community. Academy qualified patients will become trainers of trainers within their own local community. Training usually takes place online as well as during face to face workshops. 

Below you will find more information on the archived and current training courses available: 

 

Read time: 9 mins

Education Forum on biologics

The educational forum on biologics took place on 2 December 2021 from 17 to 19h Central European Time.
This forum on key topics related to biologic medicines as well as on challenges of ensuring optimal disease management for patients amid the COVID-19 pandemic has been organised by the pharmaceutical company CELLTRION. EFCCA participated in several sessions in order to provide the patient perspective.
Read time: 1 min