Nurses are Critical in Aiding Patients Transitioning to Biosimilars in Inflammatory Bowel Disease
Nurses are Critical in Aiding Patients Transitioning to Biosimilars in Inflammatory Bowel Disease: Education and Communication Strategies
October, 2018
Empowerment
Survey on couple with IBD and their offspring
IBD and parenthood - Survey on couples with IBD and their offspring
Iron deficiency with or without anaemia in IBD
P328 Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease: findings from a European online survey
Iron deficiency (ID) and iron deficiency anaemia (IDA) are conditions frequently observed in patients with inflammatory bowel disease (IBD) and require appropriate treatment. This study investigated patient and physician perspectives on the management of these conditions.
Patient Safety: Biologics and Biosimilars
Since about 2015 the issue on biologics and biosimilars has received a lot of attention from the medical, regulatory and patient community. Licensing rights of biological medicines used in the treatment not only of IBD but also other autoimmune modulated diseases are coming to an end and biosimilars medicines are being developed to compete with original biological treatment options. In various countries in the EU and elsewhere biosimilars have already entered the market.
Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease
P328 Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease: findings from a European online survey
January, 2017
Iron deficiency (ID) and iron deficiency anaemia (IDA) are conditions frequently observed in patients with inflammatory bowel disease (IBD) and require appropriate treatment. This study investigated patient and physician perspectives on the management of these conditions.
Patient Perspectives on Biosimilars
Patient Perspectives on Biosimilars: A Survey by the European Federation of Crohn's and Ulcerative Colitis
July, 2016
The aim of this survey was to find out the patients' perspectives concerning biosimilars. An online survey consisting of 14 questions was made available between November 2014 and October 2015. Only respondents who had heard of biosimilars were asked to respond the final twelve questions.
World Symposium on IBD research funded by IBD patient associations
World Symposium on IBD Research funded by IBD patients associations
Global alliance against IBD
On 18 October 2012, the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.
Anaemia from a patient perspective in inflammatory bowel disease
Anaemia from a patient perspective in inflammatory bowel disease
December, 2014
Anaemia is frequently seen in inflammatory bowel disease (IBD) and needs appropriate treatment. This online questionnaire investigated the patients' perceptions of anaemia: symptoms, prevalence, treatment and impact on quality of life.
IBD and health-related quality of life — Discovering the true impact
IBD and health-related quality of life — Discovering the true impact
October, 2014
Although inflammatory bowel diseases (IBD) significantly impact the patient's quality of life, no European-level data exists on patients’ perspectives. The primary objective of this survey was to obtain an international perspective of the impact of IBD on patients’ lives. Secondary objectives included obtaining a better understanding of the quality of care, access to care, and differences between countries, age groups, and sub-groups of IBD.
Catch your dream summer camp
The European Summer Camp, or “ESC”, project ran in 2010 and 2011.