Awareness Raising
EFCCA Patient Talk 5: (IBD) Families First
Our latest EFCCA Patient Talk "(IBD) Families First" took place on 30 June 2021 from 5 - 6 PM.
NEW: Link to register to the focus group of this project: https://redcap.link/IBD_families
Families First is a global survey aimed at 1st degree relatives of IBD patients on preferences and fears for prediction & prevention interventions.
EFCCA Patient Talk 4: COVID-19 vaccination and IBD
Friday 5 February 2021, 4:30 PM – 5:30 PM CET
As part of the EFCCA Patient Talks series, we organised our latest EFCCA Patient Talk which took place on Friday 5 February 2021 from 4.30 to 5.30 pm (CET) at our EFCCA Facebook
Live event. https://fb.me/e/3ztVNJwUG
World IBD Day 2020: Make IBD work!
Make IBD work!
19 May World IBD Day – Awareness raising campaign
EFCCA Patient Talk 3: Seasonal vaccines and IBD
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
EFCCA Patient Talk 2: psycho-social impact of lockdown in patients with IBD
COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
EFCCA Patient Talk 1: COVID-19 and medicines supply
COVID-19 and medicines supply: “Are we running out of medicines?”
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”
Living with IBD video animation series
World IBD Day 2018
World IBD Day takes place on 19 May each year and unites people in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (IBD).
EFCCA is coordinating this year´s campaign which will see famous landmarks around the globe lit in purple in order to raise awareness about the approximately 10 million people that are living with IBD.
Alongside illuminated landmarks many patient associations and activists will organise local supporting events aimed at lobbying and/providing information about IBD.
World IBD Day 2016
Over 120 landmarks worldwide joined our global World IBD Day on 19 May to raise awareness about Crohn´s disease and Ulcerative Colitis, collectively known as IBD.
Famous landmarks from 28 countries on 5 continents were lit in purple that evening to show their support for the over 5 million people who live with Crohn’s disease and ulcerative colitis.
The campaign was led by EFCCA together with its national IBD patient associations and many other IBD sister organisations and IBD activistis from around the world.