Report on Digital Health and Data Collection Symposium
We are pleased to publish the report of our Symposium on Digital Health and Data Collection which took place on 14 February 2020 during the ECCO Congress in Vienna, Austria.
Download Report.pdf
Awareness Raising
Results of COVID-19 IBD patients' perception
The results of the survey are now available.
Making the Invisible Visible
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.
IBD awareness week Serbia
Correction to: The LUCID study
Correction to: The LUCID study: living with ulcerative colitis; identifying the socioeconomic burden in Europe
December, 2021
After publication of the LUCID study, the authors reported that the author name “Avedano” was incorrectly written as “Avendano”.
The original article has been updated.
Stephanie´s Story
The impact of perianal fistula in Crohn’s disease on quality of life
The impact of perianal fistula in Crohn’s disease on quality of life: results of a patient survey conducted in Europe
May, 2021
Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL.
My IBD Journey - animation series
EFCCA has been involved in an exciting project aimed at helping people to ‘live well’ with IBD. We have developed a series of animation videos that will equip people with practical advice and relevant information and hopefully will bring about positive changes to the way they cope with their disease. The topics are as follows:
World IBD Day 2019
EFCCA together with its 36 IBD patient associations, worldwide IBD sister organisations and supporters raised IBD awareness on 19 May by highlighting famous landmarks in the colour of purple alongside the organisation of local events. The theme for this year was "Making the invisible visible" which is about showing different aspects about IBD that are not "visible" to the public.
To download social media graphics for this campaign please follow the links:
Conjugal inflammatory bowel disease
Conjugal inflammatory bowel disease: a systematic review and European survey
February, 2021
The frequency of inflammatory bowel disease (IBD) is increased after marriage to an individual with the disease. Importantly, the offspring of these couples have a significant risk for developing the disease. Herein, the study aimed to better characterise conjugal IBD.