This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag #breakthesilence we want to show the world how a person with IBD really feels.
Our colleagues from the Slovak Crohn Club
EFCCA is partner in an exciting #Horizon2020 project called ImmUniverse aimed at improving diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. Go and check out the freshly launched @IMI_JU #ImmUniverse website! You can now keep yourself up-to-date on all major project developments by visiting www.immuniverse.eu #ulcerativecolitis #atopicdermatitis #IMI_JU #H2020
One effect of the COVID-19 pandemic which is given less importance in the media coverage is the effect it has on people´s mental health. Fears and worries are normal responses to any real or perceived threat and is not surprising that many people are coping with higher levels of fear and anxiety during the COVID-19 pandemic.
Besides the fear of becoming infected with the virus other changes due to the lockdowns and restrictions in our daily habits have a significant impact on our mental well-being.
by Sanna Lönnfors, EFCCA Research and Project Coordinator
I recently participated in an online focus group on the topic of Work and IBD, the theme of this year’s World IBD Day. With seven fellow IBD patients, we thought of our job hunts and careers, how IBD has or has not affected our working lives, and what advice we could give to others who have IBD.
DRAFT..work in progress.....Patients from around Europe are telling us their stories on how IBD has affected their professional life.
We are pleased to publish the report of our Symposium on Digital Health and Data Collection which took place on 14 February 2020 during the ECCO Congress in Vienna, Austria.
Download Report.pdf
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.
