July, 2016
The aim of this survey was to find out the patients' perspectives concerning biosimilars. An online survey consisting of 14 questions was made available between November 2014 and October 2015. Only respondents who had heard of biosimilars were asked to respond the final twelve questions.
December, 2014
Anaemia is frequently seen in inflammatory bowel disease (IBD) and needs appropriate treatment. This online questionnaire investigated the patients' perceptions of anaemia: symptoms, prevalence, treatment and impact on quality of life.
October, 2014
Although inflammatory bowel diseases (IBD) significantly impact the patient's quality of life, no European-level data exists on patients’ perspectives. The primary objective of this survey was to obtain an international perspective of the impact of IBD on patients’ lives. Secondary objectives included obtaining a better understanding of the quality of care, access to care, and differences between countries, age groups, and sub-groups of IBD.
As many of us unfortunately know, fatigue is said to be one of the ‘big three’ symptoms of IBD (pain, fatigue, and urgently needing the toilet).
As several important articles note that anaemia may be especially significant in people with IBD, EFCCA, supported by Vifor Pharmaceuticals and A+A Research, carried out a survey to understand:
The effects of anaemia in IBD from the patient’s perspective
The effect of fatigue on a variety of activities in daily life
How healthcare professionals approach and communicate anaemia in IBD
Patient and Medical Associations Leaders from More than 30 Countries Gathered in Barcelona to launch the “Join the Fight Against IBD” Initiative
The initiative aimed to accelerate the disease burden recognition and to optimize standards of care for patients with IBD
PRESS RELEASE
February, 2012
Inflammatory bowel diseases (IBD) significantly impact the lives of patients. The European Federation of ulcerative Colitis and Crohn’s Associations (EFCCA) undertook a pan-European patient survey assessing the perspectives of IBD patients about their disease and its impact on their lives, relationships and careers. The project has been supported by an unrestricted educational grant from Abbott.