IBD and Fatigue
Fatigue is an important underecognized clinical problem in patients with IBD and one of the most frequently reported concerns of patients.
Awareness Raising
Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
May, 2021
The pandemic of COVID-19 had posed challenges in every aspect of the people’s life. COVID-19 had affected all age groups in both previously healthy individuals and those with chronic disease including IBD. This study aimed to investigate the occurrence and factors associated with psychosocioeconomical and medical changes in patients with IBD during the COVID-19 pandemic and post-pandemicperiod in China.
Indirect Costs of Inflammatory Bowel Diseases
July, 2022 The study showed a high relevance of the indirect cost of IBD in the context of economic evaluation, as well as a between-country variability of work-related impairment or informal care.
Indirect Costs of Inflammatory Bowel Diseases
EFCCA Magazine 2/2022
World IBD Day 2022 - Purple Talk - IBD has no age
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
Open Your Mind
Open Your Mind! ...is the name of a game developed by our colleagues from Crohn & Colitis NL to talk with your family, friends, doctors, colleagues etc in an innovative way about IBD.
IBD patients in Ukraine
Our colleagues from the Ukrainian IBD patient association ¨Fulfilling Life" have prepared this important survey on the current situation of IBD patients affected by the war in Ukraine.
World IBD Day 2022 - Purple Talk - IBD has no age
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
May, 2021
Heterogeneity exists in reported outcomes and outcome measurement instruments (OMI) from observational studies. A core outcome set (COS) for observational and real-world evidence (RWE) in inflammatory bowel disease (IBD) will facilitate pooling large datasets. This systematic review, describes and classifies clinical and patient-reported outcomes, for COS development.
Anti-SARS-CoV-2 vaccines in IBD
Implementation and short-term adverse events of anti-SARS-CoV-2 vaccines in Inflammatory Bowel Disease patients: an international web-based survey
May, 2022
Anti-SARS-CoV-2 vaccines clinical trials did not include patients with immune-mediated conditions such as inflammatory bowel disease (IBD). The study aimed to describe the implementation of anti-SARS-CoV-2 vaccination among IBD patients, patients' concerns and side-effect profile of the anti-SARS-CoV-2 vaccines using real-world data.