As part of the World IBD Day celebrations EFCC organised participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon took place on 31 May at 10 am in Brussels, Belgium. Starting point was at the Parc du Cinquantenaire.
Survey on the indirect costs of IBD
The aim of the study was to assess the influence of IBD on the patients productivity at work and relevant costs for society.
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory bowel diseases (IBD) among health institutions, healthcare providers.
EFCCA is involved in this exciting project that will identify digital endpoints that provide reliable, objective and sensitive evaluation of activities of daily living and Health-related quality of life (HRQoL) in ImmuneMediated Inflammatory Diseases such as IBD as well as other such as Rheumatoid Arthritis and Lupus and which will ultimately have a positive impact on the quality of life of these patients.
Make IBD work!
19 May World IBD Day – Awareness raising campaign
“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.
World IBD Day takes place on 19 May each year and unites people in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (IBD).
EFCCA is coordinating this year´s campaign which will see famous landmarks around the globe lit in purple in order to raise awareness about the approximately 10 million people that are living with IBD.
Alongside illuminated landmarks many patient associations and activists will organise local supporting events aimed at lobbying and/providing information about IBD.
COVID-19 and medicines supply: “Are we running out of medicines?”
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”