EFCCA has been involved in an exciting project aimed at helping people to ‘live well’ with IBD. We have developed a series of animation videos that will equip people with practical advice and relevant information and hopefully will bring about positive changes to the way they cope with their disease. The topics are as follows:
- My IBD Journey: "Life after IBD diagnosis"
- My IBD Journey: "Daily Life"
- My IBD Journey: "Mission: Remission”
- My IBD Journey: "IBD and pregnancy"
- My IBD Journey: "IBD in the workplace"
The My IBD Journey animation series are aimed at a diverse patient population and have been elaborated by a group of IBD patients, animation experts, EFCCA and Janssen. We hope that the animations provide a quick and easy medium to cover multiple topics and involve people at different ages and life-stages. Altogether we will be developing three animated videos to provide positive, practical advice to people living with IBD and to help overcome some of the key issues they face. The content of the videos reflect the views and perspectives of real people with IBD in real life scenarios and the stories are positive and upbeat aimed at giving people confidence that they can live well with IBD.For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Below you will find the videos that are already available:
1) My IBD Journey: "life after IBD diagnosis": The first animation video is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future. Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. The video is available in several languages:
ENGLISH: https://www.youtube.com/watch?v=Wy3J4l4Q5WI
DUTCH: https://www.facebook.com/janssenbelgium/videos/338527236808620
SLOVAK: https://www.youtube.com/watch?v=43uga4eQs_g&feature=share
ESTONIAN: https://www.youtube.com/channel/UCquEA0CX8MosukKjjl9OxEg
RUSSIAN: https://youtu.be/B8owBtVbIQQ
For many people, being diagnosed with an IBD can be an overwhelming and confusing time, and living with the symptoms can have a significant impact on daily life. Receiving the right support and advice can help people overcome some of the challenges of living with an IBD and lead a fulfilling life. Support and advice can come in many different forms because everyone’s needs are different. “My IBD Journey: Daily Life” focuses on some of the common challenges people living with an IBD may face and ways to overcome them.
ENGLISH: https://www.youtube.com/watch?v=hocvDuBPQSA
SPANISH: https://www.facebook.com/fundacionmasvida/videos/453224582091207/
ESTONIAN: https://www.youtube.com/channel/UCquEA0CX8MosukKjjl9OxEg
RUSSIAN: https://www.youtube.com/watch?v=DTBg-pJrvOA
RUSSIAN: https://youtu.be/d7nepMXTGYM
The topic IBD and pregnancy is important to many people with IBD who might want to start a family but have questions and concerns. We hope this video will provide some practical advice and relevant information in order to support people with IBD through their journey.
ENGLISH: https://www.youtube.com/watch?v=fBdfTAXvIRY&feature=youtu.be
RUSSIAN: https://youtu.be/SwwI7ETGoag
5) My IBD Journey: "IBD in the workplace"
In line with EFCCA´s priority theme for 2020 on Work and IBD this video animation looks at the issue of IBD in the workplace. It provides support and advice about looking for a new job, how best to talk about your condition with your colleagues, and practical advice about managing IBD at work.
WATCH the video: https://www.youtube.com/watch?v=6yWQrv7dP0E&list=PLGAunhZ_HMlXGraDQER_I1...
The videos have been produced by Janssen, in collaboration with the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA).