MyUC.eu
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
Any feedback please send to Isabella Haaf: bella.haaf@efcca.org
An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.
This year more than 40 countries across the globe joined together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of “United We Stand.” Worldwide, five million people live with Crohn’s disease and ulcerative colitis.
October 24-28, 2015, Barcelona, Spain
UEG Week is the largest and most prestigious meeting of its kind in Europe, and many consider it to be the best digestive diseases meeting in the world.
On 6 October 2015 the European Commission´s Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products.
Running together to raise awareness on IBD
On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million people in Europe. IBD can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD.
EFCCA is going to co-chair the Public Health Day on IBD to take place on 18 October 2014 in Austria on the occasion of UEG Week.
United European Gastroenterology (UEG) is organising this Public Health Day at UEG Week 2014 in collaboration with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), Austrian Coeliac Society (OAZ), Association Of European Coeliac Societies (AOECS) and IBS Support Group (ÖPRD).
Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted. The results of this survey can be used in defining strategic priorities and planning projects and awareness raising activities. The unmet needs of IBD patients can be better demonstrated and communicated to the public, health service managers and politicians.
New fraternity launched for safer healthcare everywhere
Brussels, October 15, 2014: The Irish Patients Association today launched the Pact for Patient Safety at the European Parliament with the participation of the European Commission, the European Centre for Disease Prevention and Control and the European Ombudsman.
Commissioner Borgh addressing EFCCA General Assembly
Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the 24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.
In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the efforts that the national associations and EFCCA were undertaking to improve the lives of people with IBD.