MyUC.eu
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
Any feedback please send to Isabella Haaf: bella.haaf@efcca.org
YourUC.com
This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:
username: guest@youruc.com
password: guest
Please check out the tool at:
http://youruc.sytes.net/my-uc-log/
IBD11 - unleash your knowledge
Videoclip from our World IBD Day event at the European Parliament (16 May 2013)
Date of issue: 2013-05-16
World Symposium on IBD Research funded by IBD patients associations
Global alliance against IBD
On 18 October 2012, the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.
EFCCA General Assembly 14-17 March 2013 Slovenia
Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website.
Date of issue: 2013-03-10
Watch the Join the fight against IBD Presentation Video
Date of issue: 2012-03-02
Thanks to all those who participated in the Anaemia survey. We will be back soon with its results
Date of issue: 2012-10-10
This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org
Date of issue: 2013-05-19
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18