News

IBD11 - unleash your knowledge

YourUC.com

This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:

username: guest@youruc.com

password: guest

Please check out the tool at:

http://youruc.sytes.net/my-uc-log/

MyUC.eu

After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.

Please check out the tool at:

http://myuc.eu/

Any feedback please send  to Isabella Haaf: bella.haaf@efcca.org

BACK FROM SWITZERLAND: SMCCV 25th ANNIVERSARY

WORLD IBD DAY 19 MAY 2011

EUROPEAN MEDICINE AGENCY NEW WEB SITE

Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all.

Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD

The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step, ratification, is underway. Until now, 16 Member States have deposited their instruments of ratification at the UN Headquarters.

DUBLIN - ECCO CONGRESS. EFCCA CONSOLIDATES COOPERATION WITH ECCO.

FEEDBACK FROM THE WORLD IBD DAY

Brussels, 19 May 2011

The sky is cloudy but weather forecasts are not very bad… fingers crossed.

9.45 AM – Marco Greco, Isabella Haaf and myself enter the Berlaymont building a little bit excited.

At 10.00 AM - Mrs Darmanin the head of the Cabinet of the Commissioner on Health and Consumers’ protection, Mr Dalli, is waiting for us.

WORLD IBD DAY WORK IN PROGRESS

As anticipated in the previous issue of our breaking news, EFCCA is collecting information on practices and initiatives on the World IBD Day planned by Member Associations. I'm particularly pleased to present you the first set of information coming from Crohn's and Colitis UK the brand-new working name of the National Association for Colitis and Crohn's Disease (NACC).