This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
Watch the video
Date of issue: 2013-03-11
This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org
Date of issue: 2013-05-19
Videoclip from our World IBD Day event at the European Parliament (16 May 2013)
Date of issue: 2013-05-16
IBD11 - unleash your knowledge
YourUC.com
This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:
username: guest@youruc.com
password: guest
Please check out the tool at:
http://youruc.sytes.net/my-uc-log/
MyUC.eu
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
Any feedback please send to Isabella Haaf: bella.haaf@efcca.org
An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.
This year more than 40 countries across the globe joined together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of “United We Stand.” Worldwide, five million people live with Crohn’s disease and ulcerative colitis.
Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD
The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step, ratification, is underway. Until now, 16 Member States have deposited their instruments of ratification at the UN Headquarters.