We are opening a position for Project Officer of Horizon Europe projects
The chosen candidate will be responsible for the overall administration and management support of H2020/ HE projects and will also actively contribute to the preparation of other project proposals.
Main activities and responsibilities
September, 2022
The study aims to find potential advanced treatment options for children with inflammatory bowel disease. A 2-day virtual meeting was held on April 14–15, 2021, for multi-stakeholders (clinical academics, patient community, pharmaceutical companies, and regulators) to discuss their perspectives on paediatric drug development for inflammatory bowel disease.
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May, 2021
The pandemic of COVID-19 had posed challenges in every aspect of the people’s life. COVID-19 had affected all age groups in both previously healthy individuals and those with chronic disease including IBD. This study aimed to investigate the occurrence and factors associated with psychosocioeconomical and medical changes in patients with IBD during the COVID-19 pandemic and post-pandemicperiod in China.
Our colleagues from the Ukrainian IBD patient association ¨Fulfilling Life" have prepared this important survey on the current situation of IBD patients affected by the war in Ukraine.
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
On 15th November 2016, more than 70 patient advocates and physicians from across the European Union attended the Patient Advocacy and Safety conference at the European Parliament in Brussels, Belgium.
The aim of the conference was to explore the topic of biologics and biosimilars and how different policies and practices across Europe impact on patients. Patient advocates raised concerns around non-medical switching, tracking and traceability, and informed patient consent.
Click on the attached file to download the final report.
This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of immune modulate disease groups.A full report will be made available shortly.
Date of issue: 2016-02-06
EFCCA is going to co-chair the Public Health Day on IBD to take place on 18 October 2014 in Austria on the occasion of UEG Week.
United European Gastroenterology (UEG) is organising this Public Health Day at UEG Week 2014 in collaboration with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), Austrian Coeliac Society (OAZ), Association Of European Coeliac Societies (AOECS) and IBS Support Group (ÖPRD).
EUROPEAN MEDICINE AGENCY NEW WEB SITE
Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all.