On 15^th November 2016, more than 70 patient advocates and physicians from across the European Union attended the Patient Advocacy and Safety conference at the European Parliament in Brussels, Belgium. 

The aim of the conference was to explore the topic of biologics and biosimilars and how different policies and practices across Europe impact on patients. Patient advocates raised concerns around non-medical switching, tracking and traceability, and informed patient consent. 

Click on the attached file to download the final report.

This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of immune modulate disease groups.A full report will be made available shortly.

Date of issue: 2016-02-06

EFCCA is going to co-chair the Public Health Day on IBD to take place on 18 October 2014 in Austria on the occasion of UEG Week.

United European Gastroenterology (UEG) is organising this Public Health Day at UEG Week 2014 in collaboration with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), Austrian Coeliac Society (OAZ), Association Of European Coeliac Societies (AOECS) and IBS Support Group (ÖPRD).

EUROPEAN MEDICINE AGENCY NEW WEB SITE

Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all.

An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.
 

October 24-28, 2015, Barcelona, Spain

UEG Week is the largest and most prestigious meeting of its kind in Europe, and many consider it to be the best digestive diseases meeting in the world.

Running together to raise awareness on IBD

On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million people in Europe. IBD can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD.

‘IBD and Me’
Teenage Transition Website

The transition from paediatric to adult care for young people living with IBD is ideally a staged process where young adults are gradually integrated into adult care. Viewing this transition as only an isolated ‘event’ can mean that young people reach adult services not possessing the skills required to self-manage their condition, and run the risk of drop-out or health-negating non-adherence.