Join us in celebrating
World IBD Day 2025!
Activities
EFCCA Talk: "Living with Fibrosis: Challenges, Treatments and Innovations"
On 6 February 2025, EFCCA brought together top researchers, industry experts and patient advocates for a webinar on intestinal fibrosis in IBD—an issue that too often gets overlooked. This session was part of the FIBROTARGET project (Horizon Europe), which is working to improve the prevention, diagnosis, and treatment of fibrosis and fibrostenosis in IBD.
Education Forum on biologics
The educational forum on biologics took place on 2 December 2021 from 17 to 19h Central European Time.
EFCCA Patient Talk 6: Results of Fistula Survey
Our latest EFCCA Patient Talk "The impact of perianal fistula in Crohn´s disease on quality of life" took place on 9 September 2021 from 6-7 Central European Time.
EFCCA Patient Talk 5: (IBD) Families First
Families First is a global survey aimed at 1st degree relatives of IBD patients on preferences and fears for prediction & prevention interventions.
EFCCA Patient Talk 4: COVID-19 vaccination and IBD
As part of the EFCCA Patient Talks series, we organised our latest EFCCA Patient Talk which took place on Friday 5 February 2021 from 4.30 to 5.30 pm (CET) at our EFCCA Facebook
EFCCA Patient Talk 3: Seasonal vaccines and IBD
Within the framework of our EFCCA Patient Talk series we are pleased to announce our next Patient Talk to take place on Friday 27 November 2020 from 3-4 pm. It will look at the topic of Seasonal vaccines and IBD following a survey that EFCCA had carried out amongst its members concerning the availability and practise of seasonal vaccines during our current pandemic.
EFCCA Patient Talk 2: psycho-social impact of lockdown in patients with IBD
COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
EFCCA Patient Talk 1: COVID-19 and medicines supply
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”
EFCCA Patient Talks
The global impact of COVID-19 has been overwhelming and without pause, accelerating at lightning speed, changing our lives and our way of seeing the world.
International Symposium on IBD Research 2018
EFCCA´s second Symposium on IBD Research funded by patients brought together over 80 representatives from patients groups from 5 continents, gastroenterologists and other healthcare providers as well as relevant stakeholders in order to reinforce patients’ role and voice in research.
Catch your dream summer camp
The European Summer Camp, or “ESC”, project ran in 2010 and 2011. Two international summer camps with the motto “Catch Your Dream” were organized by EFCCA and the EFCCA Youth Group in the Netherlands, and they gathered together dozens of young people with Inflammatory Bowel Disease (IBD) from European countries.
Patient Safety conference
International conference on Patient Safety, European Parliament, Brussels
Patient Safety: Biologics and Biosimilars
Since about 2015 the issue on biologics and biosimilars has received a lot of attention from the medical, regulatory and patient community. Licensing rights of biological medicines used in the treatment not only of IBD but also other autoimmune modulated diseases are coming to an end and biosimilars medicines are being developed to compete with original biological treatment options. In various countries in the EU and elsewhere biosimilars have already entered the market.
Symposium on Patient Safety
On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community
Joining forces to fight IBD in the Middle East
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”.
World Symposium on IBD research funded by IBD patient associations
World Symposium on IBD Research funded by IBD patients associations