Join us in celebrating
World IBD Day 2025!
Activities
Patient Engagement in Health Technology Assessment (HTA)
EFCCA’s commitment to bridging patient needs and policy expectations
Patient Engagement in Health Technology Assessment (HTA) is a cornerstone initiative for EFCCA, designed to bridge the gap between the real needs of patients and the expectations of regulatory authorities. By fostering a more structured and informed approach to EFCCA’s contributions, this initiative enhances the impact of patient participation in the evaluation of medicines and medical devices. The aim is to promote a more inclusive HTA process while encouraging innovation and research in Inflammatory Bowel Disease (IBD).
ECCO GRADE Crohn’s Disease (CD)Treatment Guidelines
The European Crohn’s and Colitis Organisation [ECCO] produces and regularly updates several guidelines to provide evidence-based guidance on critical aspects of IBD care to all health care professionals who manage patients with IBD.
Patient Preferences
“What do you find important in your (IBD?) treatment?”, “Which quality of life effects are important to you?”, “Which side-effects do you want to avoid?”, “Which characteristics should future drugs have according to you?”
Living with IBD video animation series
EFCCA has developed a series of animation videos that aim to equip people with practical advice and relevant information in order to bring about positive changes to the way they cope with their disease. The content of the videos reflect the views and perspectives of real people with IBD in real life scenarios. We are now working on the creation of two more animations, one that would look at IBD and maternity and the second animation about IBD and fatigue.
Indirect costs of IBD
Survey on the indirect costs of IBD
The aim of the study was to assess the influence of IBD on the patients productivity at work and relevant costs for society.
Innovative medicines - Mapping project
The objective of this project is to reduce health inequalities in Europe through an exhaustive mapping of all innovative treatments and devices available in member countries in Europe as concerns IBD care. The outcomes will support the exchange of knowledge and experience among EFCCA members, promote a better understanding of European healthcare systems, improve the mobility of people with IBD in European countries and facilitate access to treatment in other countries. The project pilot phase involves a first group of EFCCA members and will close in 2016. The second phase will be developed in 2017.
EFCCA purple team at 20 km Brussels race
The EFCCA purple team joins 20 km Brussels race in order to raise awareness about Crohn´s disease and Ulcerative Colitis.