International conference on Patient Safety, European Parliament, Brussels
No decision about us without us!
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
Brussels, 15 November 2016. The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA), the Global Alliance for Patient Access (GAfPA) and representatives from several immunomodulated disease groups are gathering in the European Parliament for an open debate with Members of the European Parliament about patient safety and patient rights especially as it pertains to biosimilars and biologic treatments.
Patients will stress the importance of patients’ right to information and knowledge as well as equal access to innovative drugs and health care in all EU member states. “Patient empowerment is a strategic objective that will lead to a better knowledge of unmet needs and to reduce health inequalities in the EU. It is therefore crucial to include patients in the decision making processes ensuring optimal treatment plans and outcomes,” said Martin Kojinkov, President of the European Federation of Crohn´s and Ulcerative Colitis Associations. “ It is critical that policymakers hear the perspective of patients as they consider how to promote regulatory frameworks that will ensure access and prioritize patient safety and well/being” said Brian Kennedy, Executive Director of Global Alliance for Patient Access.
See above in attachment: Agenda
See above: Press Release