News

Thank you! Anaemia Survey

Thanks to all those who participated in the Anaemia survey. We will be back soon with its results   Date of issue: 2012-10-10  

White Book on IBD Research funded or promoted by IBD patient associations

This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies. Date of issue: 2012-10-18  

"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report

The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidency. Hosted by the Lithuanian Parliament, the conference on the 5th of September addressed...

Survey on IBD patients' perception of Surgery

An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.   As many of you may remember, this important project was presented at the EFCCA General Assembly in 2013. The...

The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life

EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate. The questionnaire has been developed in cooperation with both experts and patient representatives.  It includes questions about...

Medical devices: more safety, more traceability

Stricter rules to ensure that medical devices such as breast or hip implants are traceable and comply with EU patient safety requirements were backed by MEPs on Wednesday. MEPs also approved laws to tighten up information and ethical requirements for diagnostic medical devices, e.g. for pregnancy or DNA testing.   Click here to read the full article. Date of issue: 2017-04-05...

Biosimilars and Biologics

BAB - Biologics & Biosimilars Survey The European Federation of Crohn´s and Colitis Associations (EFCCA) invites you to participate in this important survey on Biosimilars. The purpose of the survey is to assess patients´ knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The results of the...

EFCCA 2013 GA - Save the date

EFCCA General Assembly 14-17 March 2013 Slovenia Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website. Date of issue: 2013-03-10  

EFCCA at European Commission workshop on Biosimilars

On 6 October 2015 the European Commission´s  Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products. The objective of the workshop were to gather all relevant interested parties in order to facilitate a multi-stakeholder exchange of information, experiences and reflection on the...

Inflammatory Bowel Disease and the Effects of Tobacco/Nicotine Use

There is little patient-centered research aimed at assessing patients' perceived impact of smoking or nicotine use on their Inflammatory Bowel Disease (IBD). Therefore, EFCCA is supporting a survey on the perceived effect of smoking/nicotine use on the symptoms and progression of Crohn's disease and Ulcerative Colitis in patients who are current adult smokers ...