News
Join the fight against IBD Presentation Video
Watch the Join the fight against IBD Presentation Video
Date of issue: 2012-03-02
What you need to know about biosimilar medicines
The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published 6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish. The information...
EFCCA AGM 2016
The 26th Annual General Meeting of EFCCA took place in Brussels from 27-28 May 2016. It gathered over 40 delegates for one and a half days of busy work and exchange of information. In addition to the dealing with the institutional work and activities, delegates of the GA also listened to a presentation made by Marek Lichota from Apetitie for Life about artificial nutrition, a subject of...
Executive Summary - Patient Advocacy Workshop
This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of immune modulate disease groups.A full report will be made available shortly.
Date of issue: 2016-02-06
White Book on IBD Research funded or promoted by IBD patient associations
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
Biosimilars and Biologics
BAB - Biologics & Biosimilars Survey
The European Federation of Crohn´s and Colitis Associations (EFCCA) invites you to participate in this important survey on Biosimilars.
The purpose of the survey is to assess patients´ knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The results of the...
MEPs propose ways to make medicines more affordable
New medicine prices in the EU have risen over the past few decades, to the point of being unaffordable for many EU citizens and threatening the sustainability of national health care systems.
To strike a better balance between EU countries’ public health interests and those of the pharmaceutical industry, it calls for measures to improve the traceability of R&D costs, public funding...
The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life
EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.
The questionnaire has been developed in cooperation with both experts and patient representatives. It includes questions about...
"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report
The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidency.
Hosted by the Lithuanian Parliament, the conference on the 5th of September addressed...
Artificial Nutrition
PACIFHAN assists people travelling with Home Artificial Nutrition
“To travel is to live” Hans Christian Andersen
Imagine having a complex medical condition and treatment that enables you to live but, when it comes to travelling could pose problems if you find yourself in a medical situation unable to converse in the local language.
PACIFHAN is the International Alliance of Patient...