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Artificial Nutrition

PACIFHAN assists people travelling with Home Artificial Nutrition “To travel is to live” Hans Christian Andersen Imagine having a complex medical condition and treatment that enables you to live but, when it comes to travelling could pose problems if you find yourself in a medical situation unable to converse in the local language. PACIFHAN is the International Alliance of Patient...

"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report

The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidency. Hosted by the Lithuanian Parliament, the conference on the 5th of September addressed...

Thank you! Anaemia Survey

Thanks to all those who participated in the Anaemia survey. We will be back soon with its results   Date of issue: 2012-10-10  

EFCCA 2013 GA - Save the date

EFCCA General Assembly 14-17 March 2013 Slovenia Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website. Date of issue: 2013-03-10  

The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life

EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate. The questionnaire has been developed in cooperation with both experts and patient representatives.  It includes questions about...

"IBD and Me" Teenage Transition Website

‘IBD and Me’ Teenage Transition Website The transition from paediatric to adult care for young people living with IBD is ideally a staged process where young adults are gradually integrated into adult care. Viewing this transition as only an isolated ‘event’ can mean that young people reach adult services not possessing the skills required to self-manage their condition, and run the risk of...

What you need to know about biosimilar medicines

The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published  6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish. The information...

Symposium on Innovations in Gastroenterology

We are pleased to announce a new initiative, "Innovations in Gastroenterology, 2017 Symposium” to be held in Tel Aviv, January 4-6, 2017. This will be an exclusive event where gastroenterologists, researchers, and the pharmaceutical industry from all over the world can meet and learn about novel emerging technologies as well as practical gastroenterology and hepatology. We have mentioned this...

White Book on IBD Research funded or promoted by IBD patient associations

This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies. Date of issue: 2012-10-18  

Inflammatory Bowel Disease and the Effects of Tobacco/Nicotine Use

There is little patient-centered research aimed at assessing patients' perceived impact of smoking or nicotine use on their Inflammatory Bowel Disease (IBD). Therefore, EFCCA is supporting a survey on the perceived effect of smoking/nicotine use on the symptoms and progression of Crohn's disease and Ulcerative Colitis in patients who are current adult smokers ...