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open your mind ibd

Open Your Mind

Open Your Mind! ...is the name of a game developed by our colleagues from Crohn & Colitis NL to talk with your family, friends, doctors, colleagues etc in an innovative way about IBD. This is an excellent idea and the game that was well appreciated by our EFCCA delegates who found out about it during our General Assembly in Barclona (2022) and also had a chance to also play it You...

IBD patients in Ukraine

Our colleagues from the Ukrainian IBD patient association ¨Fulfilling Life" have prepared this important survey on the current situation of IBD patients affected by the war in Ukraine.  The survey gives an overview of the immediate effects, medical care during the war as well as other urgent aspects. DOWNLOAD SURVEY

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IBD has no age - World IBD Day 2022

This year, for World IBD Day 2022, EFCCA would like to raise awareness about the impact IBD has on elderly people. Under the slogan IBD has no age we want to put the focus on elderly people (60 plus) and see how living with Crohn´s disease and Ulcerative Colitis (collectively known as Inflammatory Bowel Disease) is impacting on their quality of life and care.  Why a...

World IBD Day 2022 - Purple Talk - IBD has no age

On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly. Our discussions included a presentation of the IBD has no age campaign, a presentation from IBD researcher  Dr Vera Asscher, Leiden University Medical Center, followed by an in-...

MEPs propose ways to make medicines more affordable

New medicine prices in the EU have risen over the past few decades, to the point of being unaffordable for many EU citizens and threatening the sustainability of national health care systems.  To strike a better balance between EU countries’ public health interests and those of the pharmaceutical industry, it calls for measures to improve the traceability of R&D costs, public funding...

Medical devices: more safety, more traceability

Stricter rules to ensure that medical devices such as breast or hip implants are traceable and comply with EU patient safety requirements were backed by MEPs on Wednesday. MEPs also approved laws to tighten up information and ethical requirements for diagnostic medical devices, e.g. for pregnancy or DNA testing.   Click here to read the full article. Date of issue: 2017-04-05...

Artificial Nutrition

PACIFHAN assists people travelling with Home Artificial Nutrition “To travel is to live” Hans Christian Andersen Imagine having a complex medical condition and treatment that enables you to live but, when it comes to travelling could pose problems if you find yourself in a medical situation unable to converse in the local language. PACIFHAN is the International Alliance of Patient...

"IBD and Me" Teenage Transition Website

‘IBD and Me’ Teenage Transition Website The transition from paediatric to adult care for young people living with IBD is ideally a staged process where young adults are gradually integrated into adult care. Viewing this transition as only an isolated ‘event’ can mean that young people reach adult services not possessing the skills required to self-manage their condition, and run the risk of...

What you need to know about biosimilar medicines

The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published  6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish. The information...

Symposium on Innovations in Gastroenterology

We are pleased to announce a new initiative, "Innovations in Gastroenterology, 2017 Symposium” to be held in Tel Aviv, January 4-6, 2017. This will be an exclusive event where gastroenterologists, researchers, and the pharmaceutical industry from all over the world can meet and learn about novel emerging technologies as well as practical gastroenterology and hepatology. We have mentioned this...