News

Biosimilars and Biologics

BAB - Biologics & Biosimilars Survey The European Federation of Crohn´s and Colitis Associations (EFCCA) invites you to participate in this important survey on Biosimilars. The purpose of the survey is to assess patients´ knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The results of the...

Medical devices: more safety, more traceability

Stricter rules to ensure that medical devices such as breast or hip implants are traceable and comply with EU patient safety requirements were backed by MEPs on Wednesday. MEPs also approved laws to tighten up information and ethical requirements for diagnostic medical devices, e.g. for pregnancy or DNA testing.   Click here to read the full article. Date of issue: 2017-04-05...

Artificial Nutrition

PACIFHAN assists people travelling with Home Artificial Nutrition “To travel is to live” Hans Christian Andersen Imagine having a complex medical condition and treatment that enables you to live but, when it comes to travelling could pose problems if you find yourself in a medical situation unable to converse in the local language. PACIFHAN is the International Alliance of Patient...

Thank you! Anaemia Survey

Thanks to all those who participated in the Anaemia survey. We will be back soon with its results   Date of issue: 2012-10-10  

EFCCA 2013 GA - Save the date

EFCCA General Assembly 14-17 March 2013 Slovenia Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website. Date of issue: 2013-03-10  

"IBD and Me" Teenage Transition Website

‘IBD and Me’ Teenage Transition Website The transition from paediatric to adult care for young people living with IBD is ideally a staged process where young adults are gradually integrated into adult care. Viewing this transition as only an isolated ‘event’ can mean that young people reach adult services not possessing the skills required to self-manage their condition, and run the risk of...

What you need to know about biosimilar medicines

The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published  6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish. The information...

Symposium on Innovations in Gastroenterology

We are pleased to announce a new initiative, "Innovations in Gastroenterology, 2017 Symposium” to be held in Tel Aviv, January 4-6, 2017. This will be an exclusive event where gastroenterologists, researchers, and the pharmaceutical industry from all over the world can meet and learn about novel emerging technologies as well as practical gastroenterology and hepatology. We have mentioned this...

White Book on IBD Research funded or promoted by IBD patient associations

This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies. Date of issue: 2012-10-18  

Inflammatory Bowel Disease and the Effects of Tobacco/Nicotine Use

There is little patient-centered research aimed at assessing patients' perceived impact of smoking or nicotine use on their Inflammatory Bowel Disease (IBD). Therefore, EFCCA is supporting a survey on the perceived effect of smoking/nicotine use on the symptoms and progression of Crohn's disease and Ulcerative Colitis in patients who are current adult smokers ...