Advocacy

World IBD Day 2023

IBD HAS NO AGE is an EFCCA campaign started in 2022 in order to raise awareness of how Inflammatory Bowel Disease (IBD) is impacting on the life of people aged 60 years and over. This year, for World IBD Day 2023 (19 May), we will launch a survey on people with IBD aged 60 years and over to investigate more on this topic with questions related to both quality of care and quality of life. 

Read time: 3 mins

Horizon Europe - METHYLOMIC

The METHYLOMIC project is advancing research to make personalised treatments for Crohn’s Disease (CD) and similar immune-mediated conditions a reality.

By building on previous studies, researchers have identified specific patterns in DNA methylation (a type of genetic marker) that can predict how well a patient will respond to certain biological therapies for CD. These markers, found in blood samples, have already been validated for three approved biological treatments, with prediction accuracy reaching up to 93% using advanced machine learning techniques. 

Read time: 2 mins

Horizon 2020 - ImmUniverse

EFCCA  is involved in an exciting EU Research Project under the Innovative Medicines Initiative (IMI 2) (Horizon 2020).

The ImmUniverse project main goal is the improved diagnostic and therapeutic options for patients living with ulcerative colitis and atopic dermatitis. New insights into disease severity and progression will enable personalised therapy for each individual patient.

Read time: 2 mins

Innovative Medicines Initiative (IMI2) - IDEA-FAST

EFCCA is involved in this exciting project that will identify digital endpoints that provide reliable, objective and sensitive evaluation of activities of daily living and Health-related quality of life (HRQoL) in ImmuneMediated Inflammatory Diseases such as IBD as well as other such as Rheumatoid Arthritis and Lupus and which will ultimately have a positive impact on the quality of life of these patients. 

Background

Read time: 2 mins

Out‐of‐pocket expenses of patients with inflammatory bowel disease

Out‐of‐pocket expenses of patients with inflammatory bowel disease: a comparison of patient‐reported outcomes across 12 European countries

October, 2022

There is a high variability of out-of-packet patient costs of inflammatory bowel diseases (IBDs), but the issue is not widely recognised. Therefore, the study compared patient costs of IBDs between 12 European countries.

Read Study 

Read time: 1 min

Transition from pediatric to adult care

Transitioning through paediatric and into adult care is a critical time for patients and, if not carried out effectively and appropriately, can impact on education, mental health and patient outcomes. It has become clear that this is a major issue for patients, their carers and clinicians and that the transition process within and across Europe urgently needs reform.

Read time: 1 min