Publications

In this section you will find a list of scientific publications relevant to the IBD community and in which EFCCA has been the co-author.

Nurses are Critical in Aiding Patients Transitioning to Biosimilars in Inflammatory Bowel Disease

Nurses are Critical in Aiding Patients Transitioning to Biosimilars in Inflammatory Bowel Disease: Education and Communication Strategies October, 2018 The increasing prevalence of inflammatory bowel disease and the high costs associated with biologic therapies suggest that biologics with lower costs, but no compromise on efficacy and safety, should be considered when developing a treatment...

Preparing for the incoming wave of biosimilars in oncology

Preparing for the incoming wave of biosimilars in oncology September, 2018 With the imminent arrival of oncology biosimilars in the therapeutic paradigm, stakeholders including a clinician, specialist nurse, patient advocate, regulator and economist provide their perspective on optimising the uptake of these new agents in the treatment of cancer. A number of key messages emerge, based on...

Iron deficiency with or without anaemia in IBD

P328 Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease: findings from a European online survey Iron deficiency (ID) and iron deficiency anaemia (IDA) are conditions frequently observed in patients with inflammatory bowel disease (IBD) and require appropriate treatment. This study investigated patient and physician perspectives...

Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease

P328 Patient and physician perspectives on managing iron deficiency with or without anaemia in inflammatory bowel disease: findings from a European online survey  January, 2017 Iron deficiency (ID) and iron deficiency anaemia (IDA) are conditions frequently observed in patients with inflammatory bowel disease (IBD) and require appropriate treatment. This study investigated patient and...

Patient Perspectives on Biosimilars

Patient Perspectives on Biosimilars: A Survey by the European Federation of Crohn's and Ulcerative Colitis July, 2016 The aim of this survey was to find out the patients' perspectives concerning biosimilars. An online survey consisting of 14 questions was made available between November 2014 and October 2015. Only respondents who had heard of biosimilars were asked to respond the final...

Anaemia from a patient perspective in inflammatory bowel disease

Anaemia from a patient perspective in inflammatory bowel disease December, 2014 Anaemia is frequently seen in inflammatory bowel disease (IBD) and needs appropriate treatment. This online questionnaire investigated the patients' perceptions of anaemia: symptoms, prevalence, treatment and impact on quality of life. Read Study

IBD and health-related quality of life — Discovering the true impact

IBD and health-related quality of life — Discovering the true impact  October, 2014 Although inflammatory bowel diseases (IBD) significantly impact the patient's quality of life, no European-level data exists on patients’ perspectives. The primary objective of this survey was to obtain an international perspective of the impact of IBD on patients’ lives. Secondary objectives included...

A European Crohn's and ulcerative colitis patient life IMPACT survey

P406 A European Crohn's and ulcerative colitis patient life IMPACT survey February, 2012 Inflammatory bowel diseases (IBD) significantly impact the lives of patients. The European Federation of ulcerative Colitis and Crohn’s Associations (EFCCA) undertook a pan-European patient survey assessing the perspectives of IBD patients about their disease and its impact on their lives, relationships...