News

Expressive Writing Intervention

Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/

Sme medzi vami campaign

Our colleagues from the Slovak Crohn Club  have launched a new campaign #smemedzivami to show the daily challenge of living with IBD BUT also to show achievements and goals. They will run patient stories and share the latest in IBD science. For more information please go to: https://crohnclub.sk/kampan-sme-medzi-vami  

IBD podcasts

We are happy to share a series of IBD podcast that have been prepared by our colleagues from the Serbian IBD patient association UKUKS together with Stetoskop info. They are subittled in English and deal with a  wide range of relevant and interesting topics related to IBD.  You can view them here: https://www.youtube.com/playlist?list=PLqc3GWypjDT4gwBq3tEz9mctZWBi2pZQM

EFCCA Patient Talk: Seasonal vaccines and IBD

EFCCA Patient Talk: Seasonal vaccines and IBD Watch the event on Youtube:  https://www.youtube.com/watch?v=0bE5C3mvmQY Friday 27 November 2020, 3-4 pm Within the framework of our EFCCA Patient Talk series we are pleased to announce our next Patient Talk to take place on Friday 27 November 2020 from 3-4 pm. It will look at the topic of Seasonal vaccines and IBD following a...

Study on Patient Preference

We are sharing information about a study to evaluate patient preferences for treatment goals in inflammatory bowel disease (IBD). The primary objective of this study is to evaluate and quantify patient preferences for IBD treatments, trading-off between different attributes of efficacy, complications/risks of treatment and health-related quality of life (HRQOL) in IBD. This will be a multi-...

ImmUniverse Website Launch

EFCCA is partner in an exciting #Horizon2020 project called ImmUniverse aimed at improving diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. Go and check out the freshly launched @IMI_JU #ImmUniverse website! You can now keep yourself up-to-date on all major project developments by visiting www.immuniverse.eu #ulcerativecolitis #atopicdermatitis...

Clinical Trials Training

EFCCA Academy 2020 - Training Certified Patient Experts We are pleased to announce that our new edition of the EFCCA Academy offering specialized training for IBD patients  started on  November 18th 2020 via the EFCCA online learning platform. This training  will focus on Clinical Trials and is composed of 3 modules: First Module:   “...

EFCCA Patient Talks

COVID-19 psycho-social impact of lockdown in patients with IBD “How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”? These amongst other questions reflect some of the concerns and fears expressed by IBD...

SECURE IBD

Coronavirus and IBD Reporting Registry! Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult registry to monitor and report on outcomes of COVID-19 occurring in IBD patients. As of December 8, 2020, there have been 3,561 COVID-19 cases in IBD patients reported in SECURE-IBD with an increasing number of countries reporting ≥...

EFCCA Patient Talks

COVID-19 and medicines supply: “Are we running out of medicines?” “Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?” These amongst other questions reflect some of the concerns and fears expressed by IBD patients in our recent survey on COVID-19 IBD patients´ perception. EFCCA is...