News

COVID-19 Vaccine IBD

COVID-19 Vaccine IBD - Perceptions and Safety of COVID-19 Vaccine in patients with Inflammatory Bowel Disease The COVID-19 pandemic has affected everyone`s life. Recently the vaccination programme across Europe has started and different countries are at different stages in their vaccination programme. Limited data is available about vaccination, especially in the context of IBD. Our aim is...

Expressive Writing Intervention

Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/

Sme medzi vami campaign

Our colleagues from the Slovak Crohn Club  have launched a new campaign #smemedzivami to show the daily challenge of living with IBD BUT also to show achievements and goals. They will run patient stories and share the latest in IBD science. For more information please go to: https://crohnclub.sk/kampan-sme-medzi-vami  

IBD podcasts

We are happy to share a series of IBD podcast that have been prepared by our colleagues from the Serbian IBD patient association UKUKS together with Stetoskop info. They are subittled in English and deal with a  wide range of relevant and interesting topics related to IBD.  You can view them here: https://www.youtube.com/playlist?list=PLqc3GWypjDT4gwBq3tEz9mctZWBi2pZQM

10 TIPS FOR MAKING IBD WORK FOR YOU AT WORK

10 TIPS FOR MAKING IBD WORK FOR YOU AT WORK by Sanna Lönnfors, EFCCA Research and Project Coordinator I recently participated in an online focus group on the topic of Work and IBD, the theme of this year’s World IBD Day. With seven fellow IBD patients, we thought of our job hunts and careers, how IBD has or has not affected our working lives, and what advice we could give to others who have...

Work and IBD: patient stories

Make IBD work!  19 May World IBD Day – Awareness raising campaign   DRAFT..work in progress.....Patients from around Europe are telling us their stories on how IBD has affected their professional life.  SPAIN   Javier Alises, School teacher When I was first diagnosed with Ulcerative Colitis, I was off sick...

Results of COVID-19 IBD patients' perception

The results of the survey are now available. The current state of emergency related to the coronavirus (COVID-19) pandemic represents a difficult period for both patients and doctors, as we face a new enemy, of which little or nothing is known, and which requires everyone's collaboration to overcome the problem. For this reason, EFCCA has conducted a survey in order to better understand...

COVID-19

https://www.dccv.de/betroffene-angehoerige/leben-mit-einer-ced/infektion... people especially those with chronic diseases such as IBD and/or who are taking  immunosuppressant medications migth be concerned about the novel Coronavirus 2019 (COVID-19).  Below we have compiled information and guidance for this new virus from ECCO, EMA, IBD sister organisations available in...

EFCCA Symposium

EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives”  which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria. This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more...

Manual for Teachers

We would like to share a useful publication prepared by Fundeccu Argentina. This guidebook is aimed at teachers to be better informed and prepared about students with chronic conditions such as #Crohn´s disease or #UlcerativeColitis. This booklet has been made with the contribution of doctors, children and adolescents with IBD, their mothers and teachers with relatives affected by this...