News
EFCCA breaking news nr. 2/2011
WORLD IBD DAY WORK IN PROGRESS
As anticipated in the previous issue of our breaking news, EFCCA is collecting information on practices and initiatives on the World IBD Day planned by Member Associations. I'm particularly pleased to present you the first set of information coming from Crohn's and Colitis UK the brand-new working name of the National Association for Colitis and Crohn's Disease (...
EFCCA Magazine 1/2017
The first issue of the EFCCA Magazine 2017 is now available online. Enjoy reading about our latest activities, news from our members and other interesting articles related to IBD. Many thanks to those who have contributed to it!!!!
efcca_magazine_1_2017WEB.pdf
ECCO-EFCCA Patient Guidelines
The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers...
Life after IBD diagnosis
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is...
Patient Safety Conference - European Parliament
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
Brussels, 15 November 2016. The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA), the Global Alliance for Patient Access (GAfPA) and representatives from several immunomodulated disease groups gathered in the European Parliament for...
Transition care in IBD
EFCCA CEO, Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care.
The press conference was organised...
"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report
The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidency.
Hosted by the Lithuanian Parliament, the conference on the 5th of September...
EFCCA Magazine 3/2016
The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as the Invisible Body (cover photo), latest IBD research, World IBD Day events and many more. A big thanks for your contributions!!!!
Journey through Middle Earth
by Jennifer Coady
Travelling has been something I have always had a passion for in life. To travel to all the wonders of the world, see different cultures and meet amazing people along the way. But in November of 2007 all dreams were held up when I was diagnosed with Ulcerative Colitis. I had been suffering for a year with it before the doctors came across it during a colonoscopy. After that...
Exploring South America
The cold, long winter months often make us dream about escaping to some warmer destination. Here we would like to share a story as posted on the website of our colleagues from Crohn´s and Colitis Australia asking volunteers to share their experiences about travelling with IBD. Please note that this information is not intended to be used as medical advice and you should speak to your health care...