News

Journey through Middle Earth

by Jennifer Coady Travelling has been something I have always had a passion for in life. To travel to all the wonders of the world, see different cultures and meet amazing people along the way. But in November of 2007 all dreams were held up when I was diagnosed with Ulcerative Colitis. I had been suffering for a year with it before the doctors came across it during a colonoscopy. After that...

Trek to Mount Everest Base Camp

IBD-trek to Mt. Everest Base Camp For many years I’ve been thinking about doing a trek in the Himalayas, especially the trek to Mt. Everest Base Camp. The year of 2014 should be the year to do it! But I’d never been in Asia before so I had to take my precautions, since we’ve all heard stories about people getting sick because of the food there. I took the following three precautions before...

Fact Sheet IBD

Factsheet on IBD

Patient Safety Conference - European Parliament

Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament Brussels, 15 November 2016.  The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA), the Global Alliance for Patient Access (GAfPA) and representatives from several immunomodulated disease groups gathered in the European Parliament for...

Life after IBD diagnosis

For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them. Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is...

ECCO-EFCCA Patient Guidelines

The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially  launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers...

EFCCA Magazine 1/2017

The first issue of the EFCCA Magazine 2017 is now available online. Enjoy reading about our latest activities, news from our members and other interesting articles related to IBD. Many thanks to those who have contributed to it!!!! efcca_magazine_1_2017WEB.pdf

Expressive Writing Intervention

Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/

Sme medzi vami campaign

Our colleagues from the Slovak Crohn Club  have launched a new campaign #smemedzivami to show the daily challenge of living with IBD BUT also to show achievements and goals. They will run patient stories and share the latest in IBD science. For more information please go to: https://crohnclub.sk/kampan-sme-medzi-vami  

EFCCA Symposium

EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives”  which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria. This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more...