News

Life after IBD diagnosis

For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them. Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is...

Patient Safety Conference - European Parliament

Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament Brussels, 15 November 2016.  The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA), the Global Alliance for Patient Access (GAfPA) and representatives from several immunomodulated disease groups gathered in the European Parliament for...

Transition care in IBD

EFCCA CEO,  Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care. The press conference was organised...

"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report

The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidency. Hosted by the Lithuanian Parliament, the conference on the 5th of September...

EFCCA Magazine 3/2016

The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as the Invisible Body (cover photo), latest IBD research, World IBD Day events and many more. A big thanks for your contributions!!!!

Journey through Middle Earth

by Jennifer Coady Travelling has been something I have always had a passion for in life. To travel to all the wonders of the world, see different cultures and meet amazing people along the way. But in November of 2007 all dreams were held up when I was diagnosed with Ulcerative Colitis. I had been suffering for a year with it before the doctors came across it during a colonoscopy. After that...

Exploring South America

The cold, long winter months often make us dream about escaping to some warmer destination. Here we would like to share a story as posted on the website of our colleagues from Crohn´s and Colitis Australia asking volunteers to share their experiences about travelling with IBD. Please note that this information is not intended to be used as medical advice and you should speak to your health care...

Fact Sheet IBD

Factsheet on IBD

Trek to Mount Everest Base Camp

IBD-trek to Mt. Everest Base Camp For many years I’ve been thinking about doing a trek in the Himalayas, especially the trek to Mt. Everest Base Camp. The year of 2014 should be the year to do it! But I’d never been in Asia before so I had to take my precautions, since we’ve all heard stories about people getting sick because of the food there. I took the following three precautions before...

My IBD Journey - Russian translation available

We are pleased to announce that four of our My IBD journey video series are now also available in Russian, the fifth video translation will be released for next World IBD Day.  For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Therefore the content of the videos reflect the views and perspectives of people with IBD in...