News
Pact for Patient Safety
New fraternity launched for safer healthcare everywhere
Brussels, October 15, 2014: The Irish Patients Association today launched the Pact for Patient Safety at the European Parliament with the participation of the European Commission, the European Centre for Disease Prevention and Control and the European Ombudsman.
Supported by more than 20 patient associations throughout Europe...
World IBD Day 2015
This year more than 40 countries across the globe joined together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of “United We...
IBD11
IBD11 - unleash your knowledge
EFCCA has been invited to speak at the IBD 11 meeting that took place in Prague (14-16 November). The meeting was organised by the pharmaceutical company Ferring and was attended by over 850 physicians from over 50 countries. Marco Greco, EFCCA chairman, presented during the opening session the work of EFCCA and the patient perspective. He put forward strong...
Symptom Tracker
YourUC.com
This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:
username: guest@youruc.com
password: guest
Please check out the tool at:
http://youruc.sytes.net/my-uc-log/
Any feedback please...
Symptom Tracker
MyUC.eu
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
http://myuc.eu/
Any feedback please send to Isabella Haaf...
Survey on IBD patients' perception of Surgery
An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.
As many of you may remember, this important project was presented at the EFCCA General Assembly in 2013. The...
EFCCA at European Commission workshop on Biosimilars
On 6 October 2015 the European Commission´s Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products.
The objective of the workshop were to gather all relevant interested parties in order to facilitate a multi-stakeholder exchange of information, experiences and reflection on the...
EFCCA to co-chair Public Health Day on IBD at UEG Week
EFCCA is going to co-chair the Public Health Day on IBD to take place on 18 October 2014 in Austria on the occasion of UEG Week.
United European Gastroenterology (UEG) is organising this Public Health Day at UEG Week 2014 in collaboration with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), Austrian Coeliac Society (OAZ), Association Of European Coeliac...
World IBD Day 2014
Running together to raise awareness on IBD
On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million...
EFCCA and World IBD Day 2013: the video
Videoclip from our World IBD Day event at the European Parliament (16 May 2013)
Date of issue: 2013-05-16