News

EFCCA breaking news nr. 5/2011

DUBLIN - ECCO CONGRESS. EFCCA CONSOLIDATES COOPERATION WITH ECCO. As every year EFCCA participated in the ECCO Congress held in Dublin from 24 to 26 February 2011. A boot and dissemination material were at disposal of the congress participants. The ECCO Congress was attended by over 3000 delegates consisting mainly of doctors and other healthcare professionals and provided...

Pact for Patient Safety

New fraternity launched for safer healthcare everywhere  Brussels, October 15, 2014: The Irish Patients Association today launched the Pact for Patient Safety at the European Parliament with the participation of the European Commission, the European Centre for Disease Prevention and Control and the European Ombudsman.   Supported by more than 20 patient associations throughout Europe...

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.   In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the...

EFCCA breaking news nr. 1/2011

WORLD IBD DAY 19 MAY 2011 Here we are again and happy 2011 to you all! A new year just started and EFCCA is pleased to inform you all that the date for the second World IBD DAY has been finally agreed. It will be again May the 19th all over the world with a new entry association being part of the worldwide platform: New Zealand! EFCCA is willing to collect all the ideas...

EFCCA breaking news nr. 3/2011

EUROPEAN MEDICINE AGENCY NEW WEB SITE Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all. Patient and associated organisations together with other interested parties may like to be reminded that the...

EFCCA breaking news nr. 4/2011

Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step,...

EFCCA breaking news nr. 7/2011

EFCCA IS GLAD TO ANNOUNCE THAT THE WORLD IBD DAY WILL BE CELEBRATED IN BRUSSELS ON THE 19TH OF MAY ! IT’’S THE FIRST TIME WE ALL HAVE THE CHANCE TO RAISE AWARENESS AND GIVE PEOPLE WITH IBD A LOUDER VOICE IN EUROPE! A REPRESENTATIVE FROM EACH NATIONAL MEMBER IS KINDLY INVITED TO ATTEND AND HER/HIS PARTICIPATION WILL BE FULLY COVERED BY EFCCA. A STREET...

EFCCA breaking news nr. 2/2011

WORLD IBD DAY WORK IN PROGRESS As anticipated in the previous issue of our breaking news, EFCCA is collecting information on practices and initiatives on the World IBD Day planned by Member Associations. I'm particularly pleased to present you the first set of information coming from Crohn's and Colitis UK the brand-new working name of the National Association for Colitis and Crohn's Disease (...

EFCCA breaking news nr.8 /2011

FEEDBACK FROM THE WORLD IBD DAY Brussels, 19 May 2011 The sky is cloudy but weather forecasts are not very bad… fingers crossed. 9.45 AM – Marco Greco, Isabella Haaf and myself enter the Berlaymont building a little bit excited. At 10.00 AM - Mrs Darmanin the head of the Cabinet of the Commissioner on Health and Consumers’ protection, Mr Dalli, is waiting for us. It is the first...

EFCCA article published in Journal of Crohn´s and Colitis

Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted.  The results of this survey can be used in defining strategic priorities and planning projects and awareness...