News

Symptom Tracker

  YourUC.com This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:   username: guest@youruc.com password: guest   Please check out the tool at:   http://youruc.sytes.net/my-uc-log/   Any feedback please...

Symptom Tracker

MyUC.eu After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions. Please check out the tool at: http://myuc.eu/   Any feedback please send  to Isabella Haaf...

Survey on IBD patients' perception of Surgery

An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.   As many of you may remember, this important project was presented at the EFCCA General Assembly in 2013. The...

World IBD Day 2015

This year more than 40 countries across the globe  joined  together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of  World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of  “United We...

EFCCA at European Commission workshop on Biosimilars

On 6 October 2015 the European Commission´s  Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products. The objective of the workshop were to gather all relevant interested parties in order to facilitate a multi-stakeholder exchange of information, experiences and reflection on the...

UEG Week Barcelona 2015

October 24-28, 2015, Barcelona, Spain UEG Week is the largest and most prestigious meeting of its kind in Europe, and many consider it to be the best digestive diseases meeting in the world. It has been running since 1992 and now attracts more than 14,000 people from across the world. It features the latest advances in clinical management, the best research in GI and liver...

EFCCA article published in Journal of Crohn´s and Colitis

Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted.  The results of this survey can be used in defining strategic priorities and planning projects and awareness...

World IBD Day 2014

Running together to raise awareness on IBD On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million...

Journey through Middle Earth

by Jennifer Coady Travelling has been something I have always had a passion for in life. To travel to all the wonders of the world, see different cultures and meet amazing people along the way. But in November of 2007 all dreams were held up when I was diagnosed with Ulcerative Colitis. I had been suffering for a year with it before the doctors came across it during a colonoscopy. After that...

Exploring South America

The cold, long winter months often make us dream about escaping to some warmer destination. Here we would like to share a story as posted on the website of our colleagues from Crohn´s and Colitis Australia asking volunteers to share their experiences about travelling with IBD. Please note that this information is not intended to be used as medical advice and you should speak to your health care...