News
Thank you! Anaemia Survey
Thanks to all those who participated in the Anaemia survey. We will be back soon with its results
Date of issue: 2012-10-10
World Symposium – 18 October 2012, Brussels
World Symposium on IBD Research funded by IBD patients associations
Global alliance against IBD
On 18 October 2012, the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.
The...
White Book on IBD Research funded or promoted by IBD patient associations
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
Short summary of the Join the Fight Press conference
Watch the video
Date of issue: 2013-03-11
World IBD Day 2013
This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org...
EFCCA and World IBD Day 2013: the video
Videoclip from our World IBD Day event at the European Parliament (16 May 2013)
Date of issue: 2013-05-16
IBD11
IBD11 - unleash your knowledge
EFCCA has been invited to speak at the IBD 11 meeting that took place in Prague (14-16 November). The meeting was organised by the pharmaceutical company Ferring and was attended by over 850 physicians from over 50 countries. Marco Greco, EFCCA chairman, presented during the opening session the work of EFCCA and the patient perspective. He put forward strong...
Symptom Tracker
YourUC.com
This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:
username: guest@youruc.com
password: guest
Please check out the tool at:
http://youruc.sytes.net/my-uc-log/
Any feedback please...
EFCCA breaking news nr. 3/2011
EUROPEAN MEDICINE AGENCY NEW WEB SITE
Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all.
Patient and associated organisations together with other interested parties may like to be reminded that the...
EFCCA breaking news nr. 5/2011
DUBLIN - ECCO CONGRESS. EFCCA CONSOLIDATES COOPERATION WITH ECCO.
As every year EFCCA participated in the ECCO Congress held in Dublin from 24 to 26 February 2011. A boot and dissemination material were at disposal of the congress participants.
The ECCO Congress was attended by over 3000 delegates consisting mainly of doctors and other healthcare professionals and provided...