News

EFCCA breaking news nr.8 /2011

FEEDBACK FROM THE WORLD IBD DAY Brussels, 19 May 2011 The sky is cloudy but weather forecasts are not very bad… fingers crossed. 9.45 AM – Marco Greco, Isabella Haaf and myself enter the Berlaymont building a little bit excited. At 10.00 AM - Mrs Darmanin the head of the Cabinet of the Commissioner on Health and Consumers’ protection, Mr Dalli, is waiting for us. It is the first...

EFCCA breaking news nr. 7/2011

EFCCA IS GLAD TO ANNOUNCE THAT THE WORLD IBD DAY WILL BE CELEBRATED IN BRUSSELS ON THE 19TH OF MAY ! IT’’S THE FIRST TIME WE ALL HAVE THE CHANCE TO RAISE AWARENESS AND GIVE PEOPLE WITH IBD A LOUDER VOICE IN EUROPE! A REPRESENTATIVE FROM EACH NATIONAL MEMBER IS KINDLY INVITED TO ATTEND AND HER/HIS PARTICIPATION WILL BE FULLY COVERED BY EFCCA. A STREET...

EFCCA breaking news nr. 6/2011

BACK FROM SWITZERLAND: SMCCV 25th ANNIVERSARY Last weekend EFCCA, represented by its Chair Marco Greco and myself, had the great honour to be invited to the SMCCV General Assembly celebrating its 25th anniversary. In a sunny and warm Friburg a significant number of delegates attended the meeting chaired by Bruno Raffa. After the auspicious speeches of Marco Greco and Rudolf...

EFCCA breaking news nr. 5/2011

DUBLIN - ECCO CONGRESS. EFCCA CONSOLIDATES COOPERATION WITH ECCO. As every year EFCCA participated in the ECCO Congress held in Dublin from 24 to 26 February 2011. A boot and dissemination material were at disposal of the congress participants. The ECCO Congress was attended by over 3000 delegates consisting mainly of doctors and other healthcare professionals and provided...

EFCCA breaking news nr. 4/2011

Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step,...

EFCCA breaking news nr. 3/2011

EUROPEAN MEDICINE AGENCY NEW WEB SITE Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all. Patient and associated organisations together with other interested parties may like to be reminded that the...

EFCCA breaking news nr. 1/2011

WORLD IBD DAY 19 MAY 2011 Here we are again and happy 2011 to you all! A new year just started and EFCCA is pleased to inform you all that the date for the second World IBD DAY has been finally agreed. It will be again May the 19th all over the world with a new entry association being part of the worldwide platform: New Zealand! EFCCA is willing to collect all the ideas...

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.   In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the...

Pact for Patient Safety

New fraternity launched for safer healthcare everywhere  Brussels, October 15, 2014: The Irish Patients Association today launched the Pact for Patient Safety at the European Parliament with the participation of the European Commission, the European Centre for Disease Prevention and Control and the European Ombudsman.   Supported by more than 20 patient associations throughout Europe...

Symptom Tracker

MyUC.eu After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions. Please check out the tool at: http://myuc.eu/   Any feedback please send  to Isabella Haaf...