News
Pouch surgery
"Considering whether to have ileal pouch surgery" is the title of a booklet for ulcerative colitis patients that was recently made in a joint effort between Andrew MacCombie from Crohn´s and Colitis New Zealand (and patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis...
European Commission publication on Biosimilars
The European Commission has published translations of comprehensive information for patients on biosimilar medicines. It contains questions and answers on biosimilar medicines and is now available in 23 languages, serving as a reliable source of information for patients. http://ec.europa.eu/docsroom/documents/26632
The information guide for healthcare professionals prepared jointly by the...
Pharmacovigilance in the EU
This book is open access under a CC BY 4.0 license.
The book presents the results of an in-depth comparative study assessing the implementation of the EU Pharmacovigilance Directive in six EU Member States. By going beyond legal transposition and instead focusing on practical implementation, this study aims to close a gap in EU compliance research. Based on qualitative interviews...
Report from Nutrition Conference
The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a...
EFCCA Magazine #19 - May 2017
Read: efccamagazine_2_2017_web.pdf
BAB Survey
BAB survey
In late 2014 we launched a survey entitled BAB – Biologics and Biosimilars to assess patients knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The scientific coordinator of the BAB survey is Professor Laurent Peyrin- Biroulet - from the Department of Hepato-Gastroenterology CHU in Nancy, France...
The IBD Journey
The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.
This video was produced for World Digestive Health Day by United European Gastroenterology in partnership with The European Crohn’s and Colitis Organisation (ECCO) for World Digestive Health Day...
EFCCA Magazine Issue 2/2017
We proudly present the second issue of the EFCCA Magazine 2017. In this edition you will find a wide range of information about World IBD Day, EFCCA activities, the EFCCA Youth Group, member news and other inspiring stories from partners and IBD activists.
Download efccamagazine_2_2017_webRev.pdf
EFCCA YOUTH Academy
We launched our Youth Academy addressed to young IBD patients (aged between 18 and 30) with the aim to increase the representativeness of the youth group, create a cohesive group of leaders of tomorrow and to empower young representatives.
The training programme was launched in November 2021 via the EFCCA's online learning platform and was attended by 14 students.
In the...
Added Value of Patient Engagement
Interesting article published by the European Medicine Agency looking into the added value of Patient Engagement.
Click here