News
New EFCCA Executive Board
The EFCCA Executive Board as elected during our GA 2019 on 25 May 2019 in Prague.
From left to right:
Martin Mastrotto (on behalf of the EFCCA Youth Group during this GA), Natasa Theodosiou, Ciara Drohan (EFCCA Vice President and Honorary Secretary), Salvo Leone (EFCCA chairman), Magda Sajak, Marko Perovic (EFCCA Treasurer).
Nutrition and Chronic Digestive Diseases: An Action Plan for Europe
The United European Gastroenterology has launched a report on "Nutrition and Chronic Digestive Diseases: An Action Plan for Europe" to which EFCCA amongst other organisations has contributed. Follow this link to access the report: Read Report
The Indirect Costs of IBD
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s...
Making the Invisible Visible
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.
Surgery in IBD
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease (IBD) is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery, the impact on the quality of life, and worries about it.
The results of this...
Open Call for Patient Input – Joint Assessment on a medicinal product for UC.
EUnetHTA deems patient involvement very important in the production of Joint Assessment reports. We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us understand patients’ unique perspectives by collecting and presenting patients’ and carers/care-givers’ views...
IBD awareness week Serbia
We are pleased to share a video that our member in Serbia Udruzenje Ukuks has produced In cooperation with Dr. Zoran Milenkovic for the occasion of #BDawareness week that is taking place in Serbia.
Follow this link to watch the video:
https://www.youtube.com/watch?v=npS07T9enos&feature=youtu.be
My IBD Journey - Mission: Remission
We are proud to announce that the third video animation of our My IBD Journey series is now available. The video entitled “Mission: Remission” explains the different types of remission and provides advice on how you can work towards achieving remission, and the importance of staying on track with your treatment.
For more information about the "My IBD Journey" video animation series please...
BAB Survey
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Independent Grants for Learning & Change
The pharmaceutical company, Pfizer, has launched a call for proposal within the framework of the "Independent Grants for Learning & Change".
The call is for proposals on "Appropriate Immunisations in Adult Patients with Immune-Mediated Inflammatory Conditions".
Follow the link for more informatio: https://www.pfizer.com/sites/default/files/rfp_files/IGLC_RFP_2018RA2_Im...