News
Nordic food branch Coop removes additives of concern from all new, own brand products
Nordic food branch Coop removes additives of concern from all new, own brand products
After call from the The Norwegian association for people with digestive diseases
Author: Marte Gylland Hegstad – web editor, Landsforeningen mot fordøyelsessykdommer (LMF)
In autumn of 2020, the The Norwegian association for people with digestive diseases (Landsforeningen mot fordøyelsessykdommer,...
Everything you wanted to know about sex – but were afraid to ask!
On the occasion of World IBD Day EFCCA is pleased to publish a leaflet on IBD and intimacy in order to break the silence around this taboo subject.
It forms part of our World IBD Day 2021 #breakthesilence campaign to raise awareness around the impact the disease has on the general well-being of IBD patients.
Download leaflet: ENGLISH.pdf
PORTUGUESE.pdf
Read more: on World IBD Day 2021...
My IBD Journey: IBD in the workplace
IBD in the workplace
In line with EFCCA´s priority theme for 2020 on Work and IBD this video animation in the series of "My IBD journey" looks at the issue of IBD in the workplace. It provides support and advice about looking for a new job, how best to talk about your condition with your colleagues, and practical advice about managing IBD at work.
The content...
ImmUniverse
ImmUniverse in a nutshell - watch and share our brand-new animated clip! Together, we @ImmUniverse_EU will improve diagnostic and therapeutic options for patients living with #ulcerativecolitis and #atopicdermatitis. See more on www.immuniverse.eu
Break the Silence! World IBD Day 2021
This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag #...
Expressive Writing Intervention
Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? Our colleagues from Crohn´s and Colitis Australia are seeking people who would like to test an online expressive writing tool. For more information or to express interest visit: https://www.crohnsandcolitis.com.au/research/clinical-trials/current-researc/
Sme medzi vami campaign
Our colleagues from the Slovak Crohn Club have launched a new campaign #smemedzivami to show the daily challenge of living with IBD BUT also to show achievements and goals. They will run patient stories and share the latest in IBD science.
For more information please go to: https://crohnclub.sk/kampan-sme-medzi-vami
IBD podcasts
We are happy to share a series of IBD podcast that have been prepared by our colleagues from the Serbian IBD patient association UKUKS together with Stetoskop info. They are subittled in English and deal with a wide range of relevant and interesting topics related to IBD.
You can view them here: https://www.youtube.com/playlist?list=PLqc3GWypjDT4gwBq3tEz9mctZWBi2pZQM
EFCCA Patient Talk: Seasonal vaccines and IBD
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
Within the framework of our EFCCA Patient Talk series we are pleased to announce our next Patient Talk to take place on Friday 27 November 2020 from 3-4 pm. It will look at the topic of Seasonal vaccines and IBD following a...
Study on Patient Preference
We are sharing information about a study to evaluate patient preferences for treatment goals in inflammatory bowel disease (IBD). The primary objective of this study is to evaluate and quantify patient preferences for IBD treatments, trading-off between different attributes of efficacy, complications/risks of treatment and health-related quality of life (HRQOL) in IBD. This will be a multi-...