World IBD Day 2022 - Purple Talk - IBD has no age
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
World IBD Day takes place on 19 May each year and unites people worldwide in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (IBD).
This year our theme for World IBD Day is IBD HAS NO BORDERS : World IBD Day 2024
As part of the World IBD Day celebrations EFCC organised participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon took place on 31 May at 10 am in Brussels, Belgium. Starting point was at the Parc du Cinquantenaire.
This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag #breakthesilence we want to show the world how a person with IBD really feels.
On the occasion of World IBD Day EFCCA is pleased to publish a leaflet on IBD and intimacy in order to break the silence around this taboo subject.
It forms part of our World IBD Day 2021 #breakthesilence campaign to raise awareness around the impact the disease has on the general well-being of IBD patients.
Download leaflet: ENGLISH.pdf
Our colleagues from the Slovak Crohn Club
by Sanna Lönnfors, EFCCA Research and Project Coordinator
I recently participated in an online focus group on the topic of Work and IBD, the theme of this year’s World IBD Day. With seven fellow IBD patients, we thought of our job hunts and careers, how IBD has or has not affected our working lives, and what advice we could give to others who have IBD.
DRAFT..work in progress.....Patients from around Europe are telling us their stories on how IBD has affected their professional life.
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s disease and ulcerative colitis, collectively known as Inflammatory Bowel Disease (IBD).
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.