On the occasion of World IBD Day EFCCA is pleased to publish a leaflet on IBD and intimacy in order to break the silence around this taboo subject.
It forms part of our World IBD Day 2021 #breakthesilence campaign to raise awareness around the impact the disease has on the general well-being of IBD patients.
Download leaflet: ENGLISH.pdf
Our colleagues from the Slovak Crohn Club
by Sanna Lönnfors, EFCCA Research and Project Coordinator
I recently participated in an online focus group on the topic of Work and IBD, the theme of this year’s World IBD Day. With seven fellow IBD patients, we thought of our job hunts and careers, how IBD has or has not affected our working lives, and what advice we could give to others who have IBD.
DRAFT..work in progress.....Patients from around Europe are telling us their stories on how IBD has affected their professional life.
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s disease and ulcerative colitis, collectively known as Inflammatory Bowel Disease (IBD).
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.