On 20 February 2025, at the 20th ECCO Congress in Berlin, we hosted our conference: "What do IBD patients find important in their treatment? Results from a global Patient Preference survey."
During the session, we presented the final results of our Patient Preference Survey, conducted in partnership with KU Leuven. This research provides valuable insights into the priorities and expectations of people living with IBD, helping to ensure that patient voices remain at the core of treatment decisions and healthcare policies.
We were honoured to welcome distinguished speakers, including Prof. Dr. Britta Siegmund (ECCO President), Prof. Bram Verstockt (KU Leuven), Elise Schoefs (PhD KU Leuven), and Cathy Walsh (N-ECCO, representing IBD nurses). Their expertise and perspectives enriched our discussions, highlighting the importance of multidisciplinary collaboration.
The engagement from the audience was a powerful reminder that patients are not just recipients of care—they are key partners in driving change.
Watch the conference in Youtube
Read and download the conference's presentations:
Salvatore Leone (EFCCA Chairperson): Patient Preferences for IBD Treatments: Understanding Patient Perspectives to Shape Future Interventions
Prof. Bram Verstockt (MD PhD KU Leuven): What do IBD patients find important in their treatment? Setting the scene, a physician’s perspective
Prof. Dr. Britta Siegmund (ECCO President): Welcome to Berlin 2025
Maria Stella De Rocchis (EFCCA EU Project Officer): Patients’ Preferences Journey: From Preferences to Outcomes
Cathy Walsh (N-ECCO): The IBD Nurses' perspective
Read and Download the Provisional Agenda
After the great success of our conference on HTA at the UEGW last October, EFCCA is delighted to share the final report of the consultation process, which involved stakeholders and experts in two rounds of webinars.
The main aim of the initiative is to optimise patient associations' participation in the HTA process and ensure that our input is aligned with the expectations of European regulators.