EFCCA MEMBERS EUROPE

Read time: 27 mins

  

Austria

ÖMCCV (Austrian Crohn’s Colitis Association)

The ÖMCCV (Austrian Crohn’s Colitis Association) is a self-initiative for people affected with inflammatory bowel diseases (IBD). They are a non-profit association who aims to raise and advance public understanding of the problems faced by IBD sufferers. 

Phone number: 01 333 06 33

Fax number: 01 333 06 33

Website: www.oemccv.at

Email: office@oemccv.at

 

Belgium

Association Crohn-RCUH

Founded in 1985, the Crohn-RCUH non-profit association (A.S.B.L.) brings together patients suffering from Crohn's disease and ulcerative colitis (UCR).

It is guided by a board of directors working in close collaboration with a medical and scientific committee.

Its aims are to provide patients with general information via a quarterly journal and an annual meeting and to represent their interests to the state authorities. For more information, please visit our Become a member section.

Phone number: 02/ 354 12 85

Website: http://www.mici.be/

 

Crohn & Colitis ulcerosa Vereniging vzw

The Crohn- & Colitis ulcerosa Association vzw is a patient association for people with chronic inflammatory bowel disease. The association tries to meet the social needs of people with chronic inflammatory bowel disease and those close to them (parent, partner, family, friend,...).
The Crohn- & Colitis ulcerosa Association vzw is an important source of information (through the quarterly magazine Crohniek, the website, information sessions,...)
Thanks to close cooperation with the members of its own Medical Advisory Board (which includes professors and doctors from all Flemish provinces), the association has access to correct and up-to-date medical information.
In addition to providing information, the association strives for government recognition of IBD (Crohn's disease and ulcerative colitis) and provides support and cooperation in scientific research (search for causes and new treatments for the diseases).
Fellow sufferers, family and friends find support and hearing from each other at meetings and organised outings.
The association is a co-founder of EFCCA (European Federation of Crohn's and Ulcerative Colitis Associations) and is at the source of the latest developments in research and treatment of IBD (Inflammatory Bowel Disease).
Thanks to a membership of more than 5,000, the association has a serious voice and input in defending patients' interests.

Phone number: 0468/27.70.52 / 0468 29 61 12

          ccv.vzw@outlook.com

 

Bulgaria

"The Bulgarian Crohn's Disease and Ulcerative Colitis Association is governed by a Board of Directors (BoD) elected by all members. The Governing Board manages the overall activities of the Association, accepts new members, organizes and monitors the implementation of the decisions of the General Assembly.

The operational management of the association is carried out by the Chairman of the Board, who organizes the immediate implementation of the goals and objectives, coordinates the activities of the Board and represents the association in the country and abroad in its relations with state, municipal, financial and banking institutions, as well as with other public organizations and legal entities.

Phone number: 0887 868 778

 

Croatia

The Croatian Association for Crohn's Disease and Ulcerative Colitis is a non-governmental and non-profit organization. It was founded in 2000 by a group of young people suffering from inflammatory bowel disease (better known as IBD) with the aim of raising public awareness about Crohn's disease and ulcerative colitis and all the difficulties that people with these diseases have. The goals of the association are to raise the quality of life of patients, promote common humanitarian, health, educational, cultural, social, informational, recreational and other interests of people with Crohn's disease and ulcerative colitis, and people with disabilities due to Crohn's disease and ulcerative colitis. The activities of the association are based on volunteer work.
Phone number: 01/ 37-64-059
Mobile: 095/8165-447

 

Cyprus

The objectives we set with the establishment of the Association were the following:

    To provide all kinds of help, support, care and attempt to solve the problems of patients.
    The support and effort to establish and operate patient monitoring centres and to protect those suffering from related diseases.
    To inform and enlighten the public about the problems of persons suffering from these diseases.
    The organisation of seminars, conferences, lectures, debates and any other relevant activity that promotes research, progress and improvement of the care provided to these persons.
    To cooperate with the relevant governmental and community services in Cyprus as well as with relevant services and related institutions abroad.

Phone number: 70008084

 

Czech Republic

You could hear about us, for the first time, in 2008 when we founded a nonprofit association Patients IBD on the impulse of patients with chronic inflammatory bowel diseases. In the beginning, the Working group of doctors for idiopathic intestinal inflammations at the Czech Gastroenterological Society helped us, under the leadership of Professor Milan Lukas. Since then, we have been helping patients with Crohn’s disease and Ulcerative colitis to manage their daily struggle with the disease.

Since 2011 we have been world-wide. We are members of the European Federation for Crohn’s Disease and Ulcerative Colitis (EFCCA), we establish contacts with organizations all around the world, participate in international projects and gain experience. We belong to the National Council of People with Disabilities of the Czech Republic and the Association of Public Benefit Organizations. We share the offices with the Gluten-free Society and with the Czech ILCO – voluntary association of people with ostomy. Representatives of the association Patients IBD are educated by the project of Academy patient’s organizations. We participate in a council meeting of patient organizations‘ at the Ministry of Health of the Czech Republic, we point out the need to improve conditions for the sick people and try to improve a better availability of modern medicines. We are also dealing with the State Institute for Drug Control and with individual health insurance companies. We believe that early diagnosis and appropriate treatment are the foundation of success; therefore we have been involved in translating Patient Guidelines in IBD treatment.

Phone number: 00420 773 209 320

 

Denmark

The Colitis-Crohn association* was established on 15 March 1989, and has approximately 5,500 members today.
The primary bowel diseases are Crohn's disease, ulcerative colitis, microscopic colitis and irritable bowel syndrome, but the association also works on a wide range of related bowel diseases.
Today there are over 70,000 Danes suffering from the bowel diseases Crohn's disease, ulcerative colitis and microscopic colitis, and together with irritable bowel syndrome (IBS) the figure is over 1 million Danes. The numbers are rising sharply.

Phone number: 35 35 48 82

 

Estonia

The Estonian Inflammatory Bowel Disease Association NGO (EIBDA) was established on April 11, 2015, during the Information Day on the IBD in Tallinn. Our Society was registered in the Commercial Register on June 5, 2015.

The EIBDA is a voluntary, self-initiated charitable organisation acting in the public interest with the aim of helping patients tackle ulcerative colitis and Crohn’s disease as well as improve the patients’ quality of life and treatment conditions. The EIBDA unites, on a voluntary basis, physical and legal persons to protect the interests of both patients with ulcerative colitis and Crohn’s disease and their carers.

Phone number: +372 5646 8816

 

Finland

The Crohn's and Colitis Association provides peer support for people with bowel disease and their loved ones.

The aim of peer support is to support the well-being and quality of life of people with bowel disease and their loved ones, and to enable them to meet and share their experiences. Crohn's and Colitis Association organises peer support meetings in different parts of Finland, and peer support is also available through Facebook groups and a discussion board on the association's website. Peer support is also available from the association's support staff by e-mail and telephone.

Peer support is about interaction. Peer support can be provided by another person who has been through a similar experience. Peer support helps people to cope with the different stages of their illness and gives them a perspective on their illness.

Adaptation coaching courses provide the knowledge, skills and support needed in everyday life to cope with a long-term illness. They can share experiences with others in a similar situation in their lives. Members of the association can also apply for subsidised leave.

Phone number: 075 325 4400

 

France

The aft is currently the only French organisation, recognised as being of public utility, to be dedicated to chronic inflammatory bowel diseases (IBD), Crohn's disease and haemorrhagic rectocolitis.

The association has several missions:

to cure by supporting fundamental and clinical research programmes, by proposing improvements in the care pathway and by producing knowledge about our diseases or about "living with" them; to inform and support patients and their relatives through a network of trained professionals and volunteers in 22 regions and our internet tools share our experience with other patients and their relatives on the internet or during local meetings; to represent all patients and their relatives, to bring their voices to the attention of political and health decision-makers; to train and inform health professionals on the daily life with the disease; communicate on our diseases, which are still far too little known and taboo; to act as a public health actor in health democracy.

Phone number: 0 811 091 623

Website: www.afa.asso.fr

 

Germany

Who we are and what we do

The German Crohn's Disease / Ulcerative Colitis Association (DCCV) e.V. is the self-help association for the more than 400,000 people with chronic inflammatory bowel disease (IBD) in Germany. 

"Our most important task is to help those affected to cope with their often difficult life situation" says Ditmar Lümmen, former Federal Chairman of the DCCV. 

In addition to personal counselling and support for affected persons and their relatives, the DCCV arranges contacts to self-help groups, doctors, nursing staff, hospitals and spa clinics. In case of questions or problems with health insurance companies, social security and pension offices, pension insurance providers or employers, the DCCV members are supported by the social law working group. Members also receive legal protection before German social courts. 

The special problems of affected children are taken care of by the DCCV's child/parent initiative: It arranges contacts between parents who are looking for advice or can give advice. One working group deals with questions of nutrition therapy. Other working groups bring together young adults, students and seniors, and people affected by pouch, stoma or PSC. 

The DCCV supports local self-help groups and organises training events for affected persons, relatives, doctors and nursing staff. Through targeted public relations work, the association provides information about the clinical pictures. In cooperation with scientists and through its own research funding, the self-help association strives to intensify research and provides suggestions for new research foci. 

By the way: The DCCV, founded in 1982, is organised by those affected. It is one of the largest patient associations in Germany.

Phone number: 030- 2000 392 11.

 

Greece

Association of People with Crohn's Disease and Ulcerative Colitis in Greece

  Who we are
The Association of People with Crohn's Disease and Ulcerative Colitis of Attica was founded in 2006 by a group of patients to meet a need:

To "break" the isolation of the sufferers,
to have a network of sympathetic and non-volunteers who would like to offer their support to any of us who need it,
to have a body that can provide information about these two diseases in plain Greek,
to make known the problems in the daily life of the sufferers, both on a personal level and on a social, work, family, etc. level, and the way they negatively affect our quality of life,
to enable a body to formally represent all patients so that we can finally know our rights and claim what has already been granted to other sufferers of chronic diseases but has not been granted to us
It is clear that in order to achieve our objectives we will have to grow. Although in Greece there is no comprehensive census of Crohn's Disease and Ulcerative Colitis sufferers, epidemiological studies from abroad indicate that about 0.1% of the population are patients. If this is also true in our country, then we are talking about at least 10,000 Greeks who suffer and by deduction about 5,000 in Attica.

The Association of People with Crohn's Disease and Ulcerative Colitis of Attica amended its statutes in 2014 and is formally ready to "embrace" all sufferers in Greece.

Phone number: +30 6944025788
Fax number: +30 6907605369

 

Hungary

 In March 1994, a few enthusiastic patients and a doctor who cared about their fate decided to form the Crohn's Club. Initially, we met every two months and listened to medical lectures on topics related to the disease. In 1997 we became an association and in 2003 we obtained our public benefit status. The Association's founders - patients with ulcerative colitis and Crohn's disease and their families, legal entities supporting our activities - set the following objectives:

    to help patients learn to live with the disease, which is often very difficult, and to improve their quality of life,
    to represent the interests of patients by giving opinions on draft legislation affecting them,
    support medical research into the disease,
    participate in international organisations of inflammatory bowel disease patients.

A brief summary of the Association's work will be presented below, including the main programmes and activities which, in order to be complete but not in order of importance, serve to achieve the objectives set.

Phone number: +36 20 5613704

 

Iceland

The CCU organization was founded in October 1995 and is an interest organization for individuals with Crohn's (regional enteritis) and Colitis Ulcerosa (ulcerative colitis). Among the organization's goals is support for newly diagnosed individuals, promoting increased general education about the diseases and publishing educational material. The organization is open to everyone, patients, relatives and other interested persons.

Establishment
Digestive specialist Ásgeir Theódorsson is the initiator of the association's establishment. When he was studying in the United States, he learned how important it is for people diagnosed with the disease to have access to such organizations. After discussing these issues with their colleagues, five patients were invited to St. Jósefsspítala in Hafnarfjörður to meet with Ásgeir and two nurses who worked at the hospital. The purpose of the meeting was to discuss the establishment of support organizations. This was in the fall of 1992. After this meeting, preparatory work began. Letters were sent to gastroenterologists and patients with inflammatory diseases of the small intestine and colon, i.e. Crohn's and Colitis Ulcerosa and they are asked to contact the preparation group. A preparatory meeting was then held in Gerðuberg on March 23, 1993. The five-person preparatory group, two relatives and eleven patients attended - out of the 450 people who were then known to have been diagnosed with the diseases. It was not possible to officially establish the organization this time, as had been hoped, but the preparatory group continued its work tirelessly. In September 1995, letters were again sent to digestion specialists, intelligent persons and also to all health centers in the country with an announced founding meeting on October 26. Everyone who received a letter was also called, and this was a great success, with around 60 people attending the founding meeting. At this meeting, the company was finally officially established.

Phone number: 871 3288
Email: ccu@ccu.is

 

Ireland

Founded in 1984, The Irish Society for Colitis & Crohn’s Disease (ISCC) is the patient-to-patient support group for people who are living with Inflammatory Bowel Disease (IBD) in Ireland. We are a member of the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA). Our medical patron is Professor Colm Ó’Moráin, who is the current president of United European Gastroenterology.

Bruno Lucas, ISCC Chairperson:
I would like to extend a very warm welcome to the new website of The Irish Society for Colitis and Crohn’s Disease, which was relaunched in November 2015. Whether you have been recently diagnosed or indeed if you have been living with this condition for a number of years, we hope that you will find information that will be useful to you in managing your condition.
The board of the ISCC is particularly proud of our achievements and we are continuing to improve our services and our supports for patients and we really hope 2016 (our 32nd year) will be even better.

Phone number: (01) 872 1416

 

Italy

The Amici association is formed by people suffering from Ulcerative Colitis or Crohn's Disease and their families.
The association is a Third Sector Organisation, non-profit and regionally based. Since 25 May 2010, A.M.I.C. ETS has been a national association with branches in 15 regions. Committees of medical specialists support the association on medical and social issues and coordinate study and research initiatives of a more strictly medical-scientific nature. The association intends to guarantee a more serene inclusion in the family and social environment to chronically ill patients whose condition is unknown to public opinion and social legislation. It is estimated that there are about 150,000 sick people in Italy today. Until the causes of these illnesses are identified, and consequent decisive therapies, their number is destined to increase. All of these people face not insignificant problems in their everyday lives, but the most serious problems actually stem from legislation that does not know enough about serious and acute chronic diseases and is not sufficiently aware of the problems they entail. The association aims to remove the obstacles that actually prevent the full social realisation of these people.

AMICI is an ETS (Entity of the Third Sector) registered with the RUNTS and endowed with legal personality; therefore, pursuant to Articles 83 and 104 of Legislative Decree 117/2017, every donation in its favour, within certain limits, is deductible or deductible from IRPEF tax (for individuals) and is a deductible expense for companies.

Phone number: +39 (02) 83413346

Mobile: +39 388 3983544
Fax number: +39 (02) 89070513

 

Latvia

The Latvian Association for Crohn's and Colitis Patients was founded on October 19, 2011. The association was created to unite patients with Crohn´s disease and colitis, their relatives, medical staff and other people.

 

Lithuania

Founded in November 2002, the Society is the only organisation of its kind in Lithuania uniting people with inflammatory bowel disease. The Lithuanian population is small and the rare cases of this disease are "scattered" in different and remote areas of the country. Therefore, the main objective of the founders was to bring together people with ulcerative colitis and Crohn's disease and their relatives so that they could exchange information and share their experiences and thus improve their quality of life.

The Association is a legal entity and cooperates with physicians, companies, local and international organisations, but remains independent in its decision-making and protects patients' rights.

Phone number: + 370-657-70734

 

Luxembourg

The afa's driving forces: 280 volunteers, 8 permanent staff at headquarters and specialised temporary staff.

The afa is above all a team of :

    280 concerned and involved volunteers who work every day to make the association and IBD better known.
    8 permanent staff members are dedicated to helping them achieve this goal.
    Specialised temporary staff provide personalised support.

All of them are attentive to the needs of patients and their families, while recognising that efforts must continue to nourish the hope of a cure by raising funds for research.

Phone number: 01 42 00 00 40

 

Malta

Malta Association of Crohn's and Colitis (MACC) is a registered (VO/ 379) non-profit-making organisation  which supports the needs of patients suffering from Crohn's disease and Ulcerative Colitis.

MACC aims to offer support and information to persons and relatives of persons suffering from Crohn's Disease and Ulcerative Colitis, and to promote public awareness about these two chronic conditions. MACC strives to help patients suffering from these conditions to enhance their self-confidence, improve their quality of life and improve their overall wellbeing. MACC also intends to promote patients' needs and rights and to encourage and promote research on these conditions.

MACC became affiliated with the Europoean Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) during the annual general conference of EFCCA held in Helsinki, Finland in April, 2010.

Phone number: 99303964

 

Montenegro

CUKUK is the patient association for Crohn´s disease and Ulcerative Colitis in Montenegro. 

 

Netherland

We are: Crohn's & Colitis NL: stronger together

  • We know what is going on with people with IBD. We are the partner when it comes to patient knowledge and experience in the field of IBD. And are able to mobilize the opinions and experiences of people with IBD at lightning speed.
  • We are the platform for people with IBD and their environment: where people can meet, share experiences and learn from each other. In short, we offer a place where people recognize themselves and therefore feel recognized.
  • We offer reliable (medical) information and share experiences about how to live with IBD. We assess and test information from the perspective of
    people with IBD.

 

Phone number: +31 348 432920
Norway

The National Association for Digestive Diseases is a country-wide organization that has a diagnosis linked to the digestive system.

LMF worker for:

give correct information about digestive diseases
help you so that you can live well despite your diagnosis through acceptance and coping
informer om your rights
support for research and treatment of diseases
fremme membernes intereser omförmyndigene
promote contact between members and delta international cooperation

LMF is a patient-driven organization and has 170 like-minded people all over the country. Through likemannsarbeid, we work with everything from chat evenings and members' meetings outside in local locations, to likemannstelefonen, members' magazines, social media, films and forums. Every year, LMF organizes youth tours, familiesamlinger, projects via Extrastiftelsen as well as webinars and IBD-dagen.

Phone number: 976 864 271

 

Poland

The Polish Society for Supporting People with Inflammatory Bowel Disease "J-elita" was established in May 2005, and since 2007 it has the status of a public benefit organization, which means that 1% of income tax can be donated to the J-elite.

Since April 2011, we have been a member of EFCCA - the European Federation of Crohn's and Colitis Ulceros Associations, which brings together Associations from 27 European countries.

We gather sick people, parents of children suffering from ulcerative colitis, Crohn's disease or microscopic enteritis.

We fight for:
• better drug reimbursement
• access to modern treatment
• wider access to nutritional treatment
• faster diagnostics and easier access to specialist doctors
• return of IBD to the list of chronic diseases (which was achieved thanks to joint work in 2009),

Phone number: +48 695 197 144

 

Portugal

The Portuguese Association for Inflammatory Bowel Disease, Ulcerative Colitis and Crohn's Disease (APDI) is a non-profit association of patients for patients, which aims to support and enable the sharing of experiences for sufferers of inflammatory bowel disease (IBD), their families and friends, as well as to improve the knowledge of the general population on this issue.

Our mission is to train and inform about the daily management of a disease that, despite being chronic, should not be lived with pessimism or as a fatality but with quality of life. With the right therapeutic component, a healthy diet, physical exercise and information we believe it is possible to "Be Happy with IBD!"

Our support is provided by phone, email or in person at our headquarters, as well as throughout the country at meetings (awareness actions and annual forum) that we hold with patients with the support of doctors. We also offer our members individual and group psychological support consultations, and provide information in the form of brochures, specifically designed for people living with IBD and those around them (parents, teachers and friends).

APDI was founded by public deed on 10 November 1994. Recognised as a Private Institution of Social Solidarity (IPSS) since 2001 (Publication in the Third Series of the Official Journal no. 103 of 8 May 2001), it is exempt from corporate income tax under the terms of art. 10 of the CIRC.

It is a member of the EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations, of the Plataforma Saúde em Diálogo (Health in Dialogue Platform) and Plataforma Mais Saúde (More Health Platform).

Phone number: 22 208 6350
Mobile: 93 208 6350

 

Romania

The Association of People with Inflammatory Bowel Diseases in Romania (ASPIIR) was founded in 2009 and formalized in 2010, with the support of the Romanian Society of Digestive Endoscopy and as a result of the desire of many people diagnosed with IBD (ulcerative colitis, Crohn's disease) to learn more about these diseases, to share their experience, to find answers.

The first meeting, in autumn 2009, in the Fundeni Clinical Institute in Bucharest, brought together a few people with IBD from Bucharest or its surroundings, a few doctors from the 3rd Gastroenterology-Hepatology Section of the Fundeni Institute of Digestive Diseases and Liver Transplantation in Bucharest. Later we were joined by other people: both IBD patients from Covasna, Constanta, Craiova, but also ostomates, their relatives or young volunteers. An important partner and consistent supporter of the association is the Romanian Club for Crohn's Disease and Ulcerative Colitis (RCCC).ASPIIR cooperates with patient associations in Europe, especially with those members of the European Federation of Crohn's and Colitis Associations (EFCCA), to which it is affiliated. It aims to become a key partner for medical teams and the biopharmaceutical industry and, in particular, to be a support for people with IBD in Romania.

We invite you to join the Association of People with Inflammatory Bowel Diseases and look forward to your stories, experiences, questions, suggestions. All these will motivate us in our efforts to improve our activities and achieve the objectives of ASPIIR.

 

Russia

 

The Inter-regional public society of IBD and short bowel syndrome patient support «TRUST» was founded in 2011. Today we have 42 regional offices throughout the country with 700 active members.
Our mission is to improve the quality of life of patients with IBD and short bowel syndrome.

Phone number: +7 913 903 6814

Website: https://vzk-life.ru

Email: vzk.rf@yandex.ru

 

Serbia

UKUKS is a non-governmental and non-profit organization. The association was founded in 2010, in order to draw the public's attention to the existence of inflammatory bowel diseases, which are on the rise, especially among the younger population. Inflammatory bowel diseases are chronic and incurable diseases that cause a lot of problems for the sufferers, so that they impair the quality of life, thus causing health and social problems. Sick people often withdraw into themselves, alienation and non-acceptance of the environment occurs.
Taking into account all of the above, the goal of the Association is to help the sick through joint work, socializing and exchange of experiences and to influence the health system in order to provide quality treatment.
Work in the Association is exclusively voluntary.

Phone number: +381 69 61 44 21

 

Slovakia

The Slovak Crohn's Club is a civil association of patients with Crohn's disease and ulcerative colitis. Any patient with one of these diseases can become a member. The condition is to send the completed application form and pay the membership fee. Currently, approximately four fifths of the membership are patients with Crohn's disease and one fifth are patients with ulcerative colitis.

The Slovak Crohn's Club is a civic association of patients with Crohn's disease and ulcerative colitis. Both diseases are relatively rare and therefore it is quite difficult for patients to establish contact with each other. Often even those who are treated by the same doctor do not know each other. Since its foundation, the club has been organizing activities that enable mutual meetings where patients can exchange practical experiences from life with this disease. Such an option is especially important for newly diagnosed patients, who are often taken aback by their new life situation. The fact that these are lifelong diseases and also the lack of information about them have a very bad effect on the psyche of young people in particular. Mutual meetings make it possible to gain practical experience (diet, effects of medications, lifestyle...) that a doctor cannot provide even with the best of intentions. We publish information about both diseases, new drugs and treatment procedures that we manage to obtain, as well as news about events in the club, in the club magazine Bulletin.
Every year we organize a reconditioning - rehabilitation stay for our members, aimed at improving the physical and mental condition of the participants. The program includes a course in the basics of yoga and relaxation, tourist trips and professional lectures. Stays are very popular among our members for their informality.
Our club is a member of EFCCA, European clubs with the same focus. The possibility of contact with patients from all over Europe, comparing our and their experiences with treatment and especially with organizing work is very inspiring for us.
The Slovak Crohn's Club is a member of the SHR, a member of the Civilized Diseases Section of the Government Council of the Slovak Republic for the issue of citizens with disabilities, cooperates with the Slovak Association of Gastroenterologists and several pharmaceutical companies that support its activities.

Phone number: +421 918 216 184

 

Slovenia

The mission of the Society for Chronic Inflammatory Bowel Disease is to improve the quality of life of people with IBD.

The association has been operating since 2004 and already has more than 1,200 members, who are organised in 11 sections throughout Slovenia. It has the status of a disability organization and the status of a society in the public interest and is a member of the European Association of Patients with Chronic Inflammatory Bowel Disease (EFCCA).

Phone number: 041 665 000

 

Spain

ACCU Spain is a Confederation created in 1987, declared of PUBLIC UTILITY, non-profit making and working to offer a sensitive, fast and efficient network of associations to help and defend IBD patients.

Our member associations have more than 8,000 members in 34 provincial and/or regional groups, with a vision that aims to create a world in which people's lives are not limited by Crohn's disease and ulcerative colitis. To achieve this, they work with sufferers to expand the support and services they receive, reduce the impact IBD has on them at any given time, and increase patients' quality of life as a result.

Objectives:

To provide moral and physical support to people affected by Inflammatory Bowel Disease (IBD) and their families.

To promote research and dissemination of the medical, therapeutic, welfare, socioeconomic and any other aspects that may arise from IBD.

To promote the principle of self-help, equal opportunities between men and women, the participation of young people in all social spheres, as well as comprehensive care for children and the elderly and the promotion of volunteering.

We divide our work into 5 main areas:

  1.Representation
  2.Research
  3.Training
  4.Dissemination
  5.Social action
We also organise the National Assembly in which medical talks and cultural and recreational activities are held. An event in which we highlight the Honorary Presidency of H.R.H. Felipe VI, in recognition of his support for the Crohn's and Ulcerative Colitis patients' collective.

ACCU Spain is also a founding and active member of the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA), of the Spanish Confederation of People with Physical and Organic Disabilities (COCEMFE), of the platform of patient organisations and maintains close collaboration with the Spanish Working Group on Crohn's Disease and Ulcerative Colitis (GETECCU).

Phone number: 915 426 326

 

Sweden

The Gastrointestinal Association is for people with diseases, injuries and other functional disorders of the gastrointestinal tract and their relatives. Our core values are knowledge, community and impact.

We are community with others in the same situation. We also engage in community advocacy and impact. We want your everyday life to work as well as possible.

Our starting point is your experience of how life is affected by gastrointestinal diseases. Is this your first contact with us? If so, we think it's funny! Welcome.

Phone number: 08-642 42 00

 

Switzerland

Crohn's Colitis Switzerland (SMCCV) is a patient self-help initiative for patients with inflammatory bowel disease (IBD).It is a non-profit association and through its work seeks to awaken and promote public understanding of the concerns and problems of sufferers.

Crohn Colite Suisse (ASMCC) est une initiative pour l'entraide de patients destinée aux patients atteints de maladies inflammatoires chroniques intestinales (MICI). The activities of our association are not turned towards profit. Through our action, we aim to improve and promote the understanding of the general public about the problems of the people concerned.

 

Ukraine

The Association of patients with Inflammatory Bowel Disease “Fulfilling Life”

was founded in 2018 by IBD patients.

 

The main goals of the Association are:

1. Тo achieve implementation of a state program for the treatment of patients with IBD;

2. Protecting the rights and legitimate interests of patients with IBD, оrganization of the patient advocacy process;

3. Information and psychological support for patients with IBD;

4. Assistance in adaptation and social rehabilitation;

Phone number: +380 95 417 7045

 

United Kingdom

We’re the UK’s leading charity in the battle against Crohn’s Disease and Ulcerative Colitis. Founded as a patients’ association in 1979, we now have 28,000 members across the UK.
These aren’t just people who have Crohn’s, Colitis and other forms of Inflammatory Bowel Disease (IBD) – our members also include their families and friends, health professionals and others who support our work. They’ve helped us set up 50 Local Groups across the nation. These arrange educational meetings, generate publicity and organise fundraising.
We work to make life better for the 300,000 people in the UK with Crohn’s, Colitis and other forms of Inflammatory Bowel Disease.

Phone number: 0300 222 5700