New Zealand - The Crohn’s and Colitis New Zealand Charitable Trust

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Phone number: 
0800 ASK IBD

Crohn's and Colitis New Zealand is a charitable trust that strives to improve the lives of all people whose lives are impacted by Crohn’s disease and ulcerative colitis.  The organisation is led by a Board of six trustees and a Chief Executive Officer.

CCNZ supports thirteen support groups throughout New Zealand and runs an annual six-day camp, Camp Purple Live. Entering its eighth year the camp hosts over eighty children and teens with Crohn's disease and ulcerative colitis. Additionally, the organisation hosts an annual two-day parent educational and networking seminar for approximately forty parents. In July 2021, the first “Living with IBD – seminar and workshop” for young adults was held. The seminar focuses on issues that affect patients in this age group the most: issues in the workplace, relationships, pregnancy as well as an update on current and future therapy. The National IBD Care Working Group was formed in 2018 to focus on advocating for newer medications, establishing national treatment guidelines, promoting the development of a national database, and advocating for legislative change to support their patients. CCNZ also distributes the New Zealand “I Can’t Wait” card for toilet access and are campaigning for businesses to make employee toilets available for those cardholders who need to use a bathroom urgently.

 

To find out more about CCNZ and what they do, please visit their website.

Postal address:  PO Box 41145, Eastbourne, Lower Hutt 5047, New Zealand