You could hear about us, for the first time, in 2008 when we founded a nonprofit association Patients IBD on the impulse of patients with chronic inflammatory bowel diseases. In the beginning, the Working group of doctors for idiopathic intestinal inflammations at the Czech Gastroenterological Society helped us, under the leadership of Professor Milan Lukas. Since then, we have been helping patients with Crohn’s disease and Ulcerative colitis to manage their daily struggle with the disease.
Since 2011 we have been world-wide. We are members of the European Federation for Crohn’s Disease and Ulcerative Colitis (EFCCA), we establish contacts with organizations all around the world, participate in international projects and gain experience. We belong to the National Council of People with Disabilities of the Czech Republic and the Association of Public Benefit Organizations. We share the offices with the Gluten-free Society and with the Czech ILCO – voluntary association of people with ostomy. Representatives of the association Patients IBD are educated by the project of Academy patient’s organizations. We participate in a council meeting of patient organizations‘ at the Ministry of Health of the Czech Republic, we point out the need to improve conditions for the sick people and try to improve a better availability of modern medicines. We are also dealing with the State Institute for Drug Control and with individual health insurance companies. We believe that early diagnosis and appropriate treatment are the foundation of success; therefore we have been involved in translating Patient Guidelines in IBD treatment.